Family as a Discipline

Current policies in health and education promote, and at times mandate, collaboration and partnership between professionals and family members. The Family "Discipline" can be defined as "...that body of knowledge about the child/family member with a disability, that is inherent to the family, acquired by life experience and affected by culture and community." (Center for Learning and Leadership, 2006).

Over the past decade there has been an emerging role in LEND programs for a Family faculty member to provide interdisciplinary teams with an invaluable perspective in the scope of their training: the perspective of the family. This role is unique in that the experience of being a family member or parent of an individual with a developmental disability cannot be learned in any university course.

More information on activities of LEND Family Faculty and Family Discipline trainees can be found below.  If you have questions about the Family discipline or LEND, contact Sarah DeMaio at AUCD.




Rubinstein-Taybi Syndrome (RTS) Event at the Newport Aquarium (OH UCEDD)

Rubinstein-Taybi Syndrome (RTS) Event at the Newport Aquarium On the last weekend in January, the UCCEDD at Cincinnati Children�s hosted an RTS booklet release party at the Newport Aquarium, drawing over 100 guests from as far as Michigan, Illinois and Tennessee as well as regional guests from Indiana, Kentucky and Ohio! The booklet, �Understanding Rubinstein-Taybi Syndrome: A Guide for Families and Professionals� was developed to help family members of children with Rubinstein-Taybi Syndrome better explain their child�s condition to healthcare providers, teachers and family members. The booklet and event could not have happened with the generous support of the Dr. Jack Rubinstein Foundation at Cincinnati Children�s.

Children and the Weinberg Child Development Center, including Danny (far left), sit around a table as staff speak to HHS leaders.

Inclusion Today, Community Living for Life (Georgetown UCEDD)

HHS leaders had an opportunity to see this inclusive model in action and learn about the innovative partnership between the Georgetown University Center for Excellence in Developmental Disabilities (UCEDD) and Easterseals DC MD VA that makes it possible. HHS Deputy Secretary Eric Hargan, Assistant Secretary of the Administration for Children and Families Lynn Johnson and ACL Administrator Lance Robertson visited several classrooms and met with staff and parents at the center to hear about how the program works and the difference it has made for families.


Michigan Development Disabilities Institute (UCEDD-MI) Awarded Nearly $1 Million Grant from Michigan Health Endowment Fund

Awards will support older adult caregiver programs

The Michigan Health Endowment Fund has awarded nearly $1 million to two Wayne State University programs that protect and enhance the well-being of our area's older adults and caregivers. The Health Fund granted $413,903 to Dr. Peter Lichtenberg's program, SAFE: Caregiver Empowerment, and $500,000 to the Michigan Development Disabilities Institute (MI-DDI) for its program, Michigan Older Caregivers of Emerging Adults with Autism and other Neurodevelopmental Disabilities (MI-OCEAN) Family Support Project.


Seeking Safety Based Collateral Groups for Caregivers of Adolescents and Young Adults with Developmental Disabilities and Mental Health Diagnoses (CA UCEDD)

Authors: Lina Rodas, Bridgid Mario Conn, Caitlin S. Sayegh, Sari Glassgold, and Sara Sherer

This is the second installation in a three-part series describing the structure, format, and development of social skills groups and parent collateral groups for individuals ages 13-21 with intellectual and developmental disabilities (IDD), as well as the vital necessity of advocacy and community partnerships in working with our clients and their families.





Disability Policy News In Brief

AUCD, Disability Policy News In Brief, every MondayPresident�s full FY 2018 budget; National Institutes of Health funding; Update on AHCA; Lifespan Respite; Career and technical education; Disability Integration Act; and more



Disability Policy News In Brief

AUCD, Disability Policy News In Brief, every Monday

Zika and other health care updates, new housing resources, Complex Rehabilitation Technology and Medicare, Family Support legislation.




Helping Parents, Helping Children: Two-Generation Mechanisms

The Spring 2014 issue of Future of Children, Helping Parents, Helping Children: Two-Generation Mechanisms (Vol. 24, Issue 1), focuses on programs that simultaneously serve disadvantaged parents and children with high-quality interventions. Because the home environment is so important for children's development, many people think such "two-generation" programs can be more effective and efficient than programs serving children and parents individually. The issue discusses six mechanisms through which parents and the home environment are thought to influence children's development: stress, education, health, income, employment, and assets. See also, the accompanying policy brief, Early Stress Gets under the Skin: Promising Initiatives to Help Children Facing Chronic Adversity (Spring 2014), by Ross A. Thompson and Ron Haskins.


Making the Link Between Health and School Readiness

Promoting healthy development and treating children's health issues enhances their readiness for school. The Office of Head Start's National Center on Health released a new interactive online tool, Making the Link Between Health and School Readiness (2014), which is designed to help early childhood program leaders integrate meaningful health strategies with school readiness goals.


Parent Guides on Special Education Dispute Resolution

Four Parent Guides on Dispute Resolution options under the Individuals with Disabilities Education Act (IDEA) are available from the National Center on Dispute Resolution in Special Education (CADRE) in both English and Spanish. The guides are intended for parents of children ages 3-21. The topics covered include mediation, due process hearings, written State complaints, and resolution meetings



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