Council on Leadership in Advocacy (COLA)

 

Purpose

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The purpose of the Council on Leadership and Advisory (COLA) is to enhance the Association of University Centers on Disabilities by fostering current and new leaders with lived experience of disability, including their family members, to promote leadership in their programs and communities. Council membership will expand to include directors, faculty, staff, and advisers at center programs, and CAC members.

 
 

How COLA Relates to AUCD and Its Work

COLA works to enhance AUCD by fostering and supporting current and new leaders with lived experience of disability, including their family members in order to promote this same leadership in their programs, communities, and regions, and to serve in liaison roles with local disability leadership. The Council helps the association to:

  • Build effective partnerships with other AUCD Councils and Committees, federal agencies, and other national disability groups.
  • Build the capacity of UCEDD Consumer Advisory Committees.
  • Develop leaders and mentors that build the capacity of the network to affect change at the local, state, and national levels.
  • Assist in the development of standards for participation of people with disabilities and family members in AUCD network centers and programs
  • People with disabilities and family members participate in program planning, research, and evaluation.

 
 

Membership

The Council on Leadership in Advocacy, also known as COLA, is made up of individuals with disabilities and family members from each AUCD network center and program. COLA members are involved in Community Advisory Councils at UCEDDs, AUCD Councils and Committees, AUCD Special Interest Groups, and other advocacy opportunities. Membership is open to anyone in the AUCD network. However, each center will designate an individual representative who will cast one vote when a matter before the Council requires such action.

 
 

2018 Focus Areas

The 2018 COLA annual plan has been drafted to align with the AUCD 2018 Strategic Map.

 

  • Diversity & Equity: Utilize network resources to support COLA membership.
  • Leadership: COLA membership champions and model diversity, equity, and inclusion.
  • Research: 1) Increase visibility of COLA within AUCD network; 2) COLA is an integral partner to strengthen network engagement and collaboration; 3) People with I/DD &/or family members lead or direct research within AUCD network.
  • Policy: COLA contributes to AUCD network policy, practices, and research.
 
 

COLA Leadership

 
 

Upcoming Events
of Interest to
COCA Members

AUCD Leadership Academy  Copy to Calendar
Monday, June 25, 2018 - Saturday, June 30, 2018

More Events >

 
 

NEW ON THE COLA
WEB PAGES

 

6/20/2018

AUCD Strongly Opposes Family Separation at Borders, Calls on Lawmakers and the Administration to Take Action

The Association of University Centers on Disabilities (AUCD) is a diverse, interdisciplinary leadership, research, training, and service network which includes the nation's leading experts on child development, family-centered care, and trauma. Those perspectives and our shared humanity provide the foundation to unequivocally oppose the separation of families as they enter America.

 
 

5/17/2018

Nominate a Deserving Individual for an AUCD Award

Deadline: July 31, 2018

The annual AUCD Awards gives us an opportunity to recognize individuals, programs, and organizations that have demonstrated exceptional leadership and made outstanding contributions. Comprised of 10 categories, the AUCD awards represent the 'best of the best' within our network, and local, state, and federal partners. We know the depth, breadth, and expertise of our trainees, advocates, professionals, and partners is extraordinary and deserving of recognition. In preparation for this year's conference, we invite you to nominate someone who truly inspires you.

 
 
LEND Trainees and Faculty pose with Senator Shenna Bellows (third from left) and Kim Humphrey (far right.

6/25/2018

Grassroots Advocacy Strategies in the State of Maine (ME LEND)

The Maine LEND Program hosted an Advocacy and Strategy Forum on April 27, 2018, in Lewiston, Maine. LEND Trainee, Kim Humphrey, a public health advocate, founder of Community Connect ME, and mother of a child with autism, led the charge with key decision makers who work with and/or have children with Intellectual Developmental Disabilities (I/DD) in the state. State Senator Shenna Bellows and former Maine State Legislator Peter Stuckey led one key aspect of the Strategy Forum. Speakers and presenters also included University of Maine professor and Center for Community Inclusion and Disability Studies Director, Alan Cobo-Lewis; LEND trainee and occupational therapist, Taylor Cahill;LEND trainee and family member, Sanaa Abduljabbar; Coordinator of Education and Autism for the Center for Community Inclusion and Disability Studies, Alan Kurtz. There were approximately 40 leaders and advocates in attendance.

 
 

6/19/2018

Tuesdays with Liz: Disability Policy for All - Kate Mevis

This week, Liz sits down with Kate Mevis, who works for Senator Bob Casey as the Staff Director for the U.S. Senate Special Committee Aging. They discuss Liz's contributions on Capitol Hill during her time as a fellow and Congressional initiatives on inclusive employment.

 
 

6/18/2018

Mailman Center Collaborates with Special Olympics on Youth Leadership Summit (FL UCEDD/LEND)

The University of Miami Miller School of Medicine's Mailman Center for Child Development collaborated with Special Olympics in a youth leadership summit, which took place June 3 at UM's Donna E. Shalala Student Center. The purpose of the summit was to highlight the Unified Champion Schools program, which incorporates Special Olympics' sports, leadership and related activities that empower youth to be change agents in their communities.

 
 

6/12/2018

Tuesdays with Liz: Disability Policy for All - Rylin Rodgers

This week, Liz goes from being the interviewer to the interviewee. Rylin, AUCD's new policy director, stars as a guest host and interviews Liz about her time spent as a fellow on Capitol Hill for Senator Robert Casey.

 
 

6/11/2018

Community-Based Interventions: Access to Assistive Technology for Latinos with Disabilities: Success Comes from Collaboration (IL UCEDD/LEND)

Although Hispanics are the largest minority in the U.S., research indicates that there is a significant gap in knowledge about assistive technology (AT). Over the course of three years, I have been collaborating with the Assistive Technology Unit (ATU) located at the University of Illinois at Chicago and The Autism Program of Illinois in order to provide Latinos with disabilities (LWDs) and their families with culturally and linguistically relevant resources about AT.

 
 
Parents Engaged in Policy video thumbnail

6/11/2018

Parents Engaged in Policy: A Six-Part Conversation About Restraint and Seclusion in Maine (ME UCEDD and NH-ME LEND)

Two Maine parents of children with disabilities have produced a series of six videos to help educate parents about appropriate and incorrect uses of restraint and seclusion in educational settings in Maine.

 

More >