Council on Leadership in Advocacy (COLA)

 

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The AUCD Board of Directors has established a number of Councils and Committees that are made up of experts in the field to help the Board address emerging trends and issues, and to facilitate communication across and beyond the AUCD network. The Council on Leadership in Advocacy, also known as COLA, is made up of individuals with disabilities and family members from each University Center across the AUCD network.  COLA members are involved in Community Advisory Councils at University Centers for Excellence in Developmental Disabilities (UCEDDs), AUCD Councils and Committees, AUCD Special Interest Groups, and other advocacy opportunities.  Membership is open to anyone in the AUCD network. However, each center will designate an individual representative who will cast one vote when a matter before the Council requires such action.

 

 

 
 

Mission

The mission of the AUCD Council on Leadership in Advocacy (COLA) is to advise and assist the AUCD network to enhance the quality of life for individuals with developmental disabilities and their families. COLA works to enhance AUCD by fostering and supporting current and new leaders with lived experience of disability, including their family members in order to promote this same leadership in their programs, communities, and regions, and to serve in liaison roles with local disability leadership. The Council helps the association to:

  • Build effective partnerships with other AUCD Councils and Committees, federal agencies, and other national disability groups.
  • Build the capacity of local University Center Consumer Advisory Committees (CACs), including identifying needs for assistance, providing technical assistance, and disseminating information about exemplary and innovative practices.
  • Envision, actively advocate for, and disseminate information about the next generation of policy and practice that will help make the promise of full participation a reality.
  • Develop leaders and mentors that build the capacity of the network to affect change at the local, state, and national levels.
  • Assist in the development of standards for participation of people with disabilities and family members in UCEDD education, research, and service programs and in AUCD functions.
  • Serve as a model and resource for others desiring to infuse the participation people with disabilities and family members into program planning, research, and evaluation.

 

 

 
 

Purpose

The purpose of the Council is to enhance the Association by fostering current and new leaders with lived experience of disability, including their family members, to promote leadership in their programs and communities. Council membership will expand to include directors, faculty, staff, and advisors at center programs, and CAC members.

 

 
 

History

The Council on Consumer Affairs first convened in the fall of 1994; the name was later changed to the Council on Consumer Advocacy. The Council was formed as a result of AUCD's (formerly AAUAP) increasing recognition of the importance of receiving consistent and ongoing consumer feedback. Start-up activities were funded by the Administration on Developmental Disabilities, through a Project of National Significance entitled "Leadership and Choices." Principle support was provided by Bruce Eddy of AUCD and Carl Calkins of the University of Missouri/Kansas City, Missouri's UCEDD.

The Council leadership structure includes several internal committees and two co-chairs. 1998 By-Laws stipulate that one co-chair must be an individual with a disability, and the other be the family member of an individual with a disability. The three-year, staggered co-chair positions carry with them a slot on AUCD's Board of Directors.

Full Council membership consists of one representative of each UCEDD, designated by that UCEDD's director. The Council continues to strive to meet its long-term goal of full membership.

In 2003-2004, AUCD made a commitment to revitalize the role of COCA within the network. Past President of AUCD, David Johnson appointed an ad hoc COCA Workgroup. This workgroup, chaired by Carl Calkins, solicited feedback from the AUCD network and met several times to develop a renewed vision to strengthen the role of COCA. A final set of recommendations was produced and presented to the board and UCEDD Directors at the UCEDD Directors' retreat May 2-3, 2005 in Chicago, IL.

 

 
 

COLA Leadership

 

 

 
 

Upcoming Events
of Interest to
COCA Members

2022 State-of-the-Science on Disability Statistics  Copy to Calendar
Thursday, October 6, 2022 - Friday, October 7, 2022

AIR-P Presents: Evaluating the Use of Flexible Seating for Neurotypical and Neurodivergent Children  Copy to Calendar
Tuesday, October 18, 2022

Strategies for Writing Manuscript for Peer Review  Copy to Calendar
Monday, October 31, 2022

AIR-P Research Day at AUCD 2022 Conference  Copy to Calendar
Sunday, November 13, 2022 - Wednesday, November 16, 2022

More Events >

 
 

NEW ON THE COLA
WEB PAGES

 
Team photo of the Mississippi Deep South Hurricanes Softball Team

9/19/2022

IDS Staff Members Participate in World Series of Wheelchair Softball

The Institute for Disability Studies offers a variety of year-round adaptive recreation and sports programming, including Quidditch, wheelchair basketball and tennis. Recently, two staff members, Sylvester Crosby and Robbie Sullivan, joined their Deep South Hurricanes teammates to represent Mississippi in the 2022 Wheelchair Softball World Series (WSWS) August 4-6 in Crestwood, Illinois.

 
 
 Cover of Frontline Initiative, 18(1), showing an employee with disabilities in front of the store where he works. He is standing with his DSP. Both people are Black.

9/19/2022

New Frontline Initiative: Diverse Voices

The National Alliance for Direct Support Professionals and the MN UCEDD have released the latest issue of their joint publication, Frontline Initiative. This issue, available in English and Spanish, is about the diverse voices of direct support professionals.

 
 

9/19/2022

The Maryland Center for Developmental Disabilities at Kennedy Krieger Institute Welcomes Five New Staff Members

The Maryland Center for Developmental Disabilities at Kennedy Krieger Institute recently hired five new staff members. This article introduces each staff member including their current title, summary of their position, education background, and relevant work history.

 
 
Cover of Impact, 35(2), showing a young employee with a disability in a workshop. He is operating industrial equipment and wearing a work apron.

9/19/2022

Transition Through a Global Lens

The new issue of Impact, which is the flagship publication of the MN UCEDD, is about transition in a global context for people with intellectual, developmental, and other disabilities.

 
 
Oregon Health and Science University (OHSU) Logo consisting of yellow, blue, and green intertwined lines with OHSU written underneath in gray letters.

9/19/2022

Why is it so difficult to change ableist language?

By Daniela Buchillon-Almeida, OHSU UCEDD Intern

We have moved away from using many words with harmful and oppressive connotations over the past couple of decades, but why has knowledge, understanding, and change of ableist language remained limited?

 
 

9/19/2022

WVU CED Launches New Disability Micro-credentials/Badges for Faculty and Staff

A new micro-credential (badge) available at West Virginia University focuses on disabilities and disability services and supports within the university setting (https://cedwvu.org/badges/). Specifically designed for faculty, instructors and staff from any university, this badge series provides information you may choose to use for: Enhancing your classroom environment and course experience for students. Enhancing your clinical/professional first impressions with patients and clients.

 
 
 Alt text: Preteen boy with brown hair and grey shirt holds head in hand in front of light grey background.

9/16/2022

Mild traumatic brain injury increases risk of behavioral and emotional problems in kids

Researchers at the Del Monte Institute for Neuroscience, one of AUCD's Intellectual & Developmental Disabilities Research Centers, found children with a mild TBI experienced a 15-percent increased risk of an emotional or behavioral problem. The risk was the highest in children around ten years old. This study used MRI and behavioral data from the Adolescence Brain Cognitive Development (ABCD) Study. The University of Rochester is one of 21 sites collecting data for this study.

 
 

9/16/2022

The Boggs Center on Developmental Disabilities (NJ UCEDD/LEND) Launches Community Life Video Series

The Boggs Center on Developmental Disabilities (NJ UCEDD/LEND) launched a new Community Life Video Series created through funding from New Jersey's Department of Human Services, Division of Developmental Disabilities and in partnership with people with developmental disabilities. The Community Life Video Series is meant to illustrate key concepts of the federal Home and Community Based Services (HCBS) Settings Final Rule which requires that people with developmental disabilities have full access to community life and receive services in the most integrated setting possible. In each video, people with developmental disabilities share why community life and aspects of the Rule that support it are important to them.

 
 

9/15/2022

Building Futures Together Recognition Ceremony

On May 24, the Building Futures Together program held a recognition ceremony on campus for its trainees. Fifteen paraprofessional trainees from the first cohort received Certificates of Completion for Level 2 (on-the-job training) and 20 paraprofessional trainees from the second cohort received Certificates of Completion for Level 1 (didactic coursework training). Congratulations to all!

 
 

9/15/2022

The "I Generate Rural Opportunities for Work" (iGROW) Project

The "I Generate Rural Opportunities for Work" (iGROW) Project is a one-year pre-employment and leadership-training program for up to 20 students with disabilities who are currently enrolled in middle school and high school (ages 14-22). The purpose of the program is to provide a training environment to support students with disabilities to gain the necessary skills and experiences in work readiness in order to successfully transition into postsecondary education and/or competitive integrated employment.

 
 

9/15/2022

The 2022 Justice, Equity, Diversity and Inclusion Award Staff Winner

Ashley Salmon, Diversity, Equity, and Inclusion Research Associate at the Center for Leadership in Disability at the School of Public Health has been awarded the 2022 Justice, Equity, Diversity and Inclusion (JEDI) Award.

 
 

9/14/2022

Alaska Traditional Transition Skills Curriculum

The Alaska Traditional Transition Skills curriculum project goal is to improve the quality of life, connection to local community, and increase work related skills for teens and young adults with disabilities who live in rural Alaska. It provides tools teachers can use to incorporate traditional values and knowledge into Individual Education Plans (IEPs) and Transition Plans. Though each chapter of this project ties to the cultural values and topics of a specific region of Alaska, the skills can be used and adapted.

 
 

9/14/2022

Frontline Initiative: The Diverse Voices of Direct Support Professionals

he new issue of Frontline Initiative features diverse voices of 18 direct support professionals from underrepresented communities, broadening our understanding of lesser-heard voices. Funded in part by AUCD, this free newsletter, published bi-annually by the Institute on Community Integration and the National Alliance for Direct Support Professionals, is for DSPs and frontline supervisors who support people with intellectual and developmental disabilities in living the lives they want in their communities of choice. Alt text for photo: A store employee with his direct support professional. Both people are Black.

 
 

9/14/2022

Inaugural "The Style Show: A Runway to Empower"

Rare by Design hosted their inaugural event "The Style Show: A Runway to Empower" to give a platform, or in this case a runway, for all. Rare by Design was founded by Kendra Gottsleben, a marketing and communications specialist with the University of South Dakota Center for Disabilities (SD UCEDD/LEND). Gottsleben is a disability/rare disease advocate, author, and seeks to expand the region's diversity mindset. that makes us beautiful.

 
 

9/14/2022

MN LEND fellow co-founds Minnesota Autistic Alliance

Milena Bates (MN LEND 2021-22), co-founder of the Minnesota Autistic Alliance, is recruiting self-advocates for new projects supported by a grant from the Minnesota Department of Human Services. Cultivate, a 10-hour online self-advocacy course covering how to identify needs, navigate barriers, and understand intersectionality (among other topics), begins August 23. It is designed for and by neurodivergent self-advocates. Lattice is a partnering program that will connect a team of three partners best suited to the support needs of a self-advocate. The group also is recruiting writers for an accessible, digital resource database.

 
 

9/6/2022

Building Community Capacity for Accessible Vaccine Events

The UCEDD in the Institute on Development and Disability at OHSU worked with the Oregon Health Authority to create resources for vaccine events to be more inclusive. They made videos, guides, and checklists to go with a boxed kit of accessibility tools. This will help people with disabilities and people who speak languages other than English get vaccines in their communities. There are more videos and resources coming soon.

 

More >