Council on Leadership in Advocacy (COLA)

 

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The AUCD Board of Directors has established a number of Councils and Committees that are made up of experts in the field to help the Board address emerging trends and issues, and to facilitate communication across and beyond the AUCD network. The Council on Leadership in Advocacy, also known as COLA, is made up of individuals with disabilities and family members from each University Center across the AUCD network.  COLA members are involved in Community Advisory Councils at University Centers for Excellence in Developmental Disabilities (UCEDDs), AUCD Councils and Committees, AUCD Special Interest Groups, and other advocacy opportunities.  Membership is open to anyone in the AUCD network. However, each center will designate an individual representative who will cast one vote when a matter before the Council requires such action.

 

 

 
 

Mission

The mission of the AUCD Council on Leadership in Advocacy (COLA) is to advise and assist the AUCD network to enhance the quality of life for individuals with developmental disabilities and their families. COLA works to enhance AUCD by fostering and supporting current and new leaders with lived experience of disability, including their family members in order to promote this same leadership in their programs, communities, and regions, and to serve in liaison roles with local disability leadership. The Council helps the association to:

  • Build effective partnerships with other AUCD Councils and Committees, federal agencies, and other national disability groups.
  • Build the capacity of local University Center Consumer Advisory Committees (CACs), including identifying needs for assistance, providing technical assistance, and disseminating information about exemplary and innovative practices.
  • Envision, actively advocate for, and disseminate information about the next generation of policy and practice that will help make the promise of full participation a reality.
  • Develop leaders and mentors that build the capacity of the network to affect change at the local, state, and national levels.
  • Assist in the development of standards for participation of people with disabilities and family members in UCEDD education, research, and service programs and in AUCD functions.
  • Serve as a model and resource for others desiring to infuse the participation people with disabilities and family members into program planning, research, and evaluation.

 

 

 
 

Purpose

The purpose of the Council is to enhance the Association by fostering current and new leaders with lived experience of disability, including their family members, to promote leadership in their programs and communities. Council membership will expand to include directors, faculty, staff, and advisors at center programs, and CAC members.

 

 
 

History

The Council on Consumer Affairs first convened in the fall of 1994; the name was later changed to the Council on Consumer Advocacy. The Council was formed as a result of AUCD's (formerly AAUAP) increasing recognition of the importance of receiving consistent and ongoing consumer feedback. Start-up activities were funded by the Administration on Developmental Disabilities, through a Project of National Significance entitled "Leadership and Choices." Principle support was provided by Bruce Eddy of AUCD and Carl Calkins of the University of Missouri/Kansas City, Missouri's UCEDD.

The Council leadership structure includes several internal committees and two co-chairs. 1998 By-Laws stipulate that one co-chair must be an individual with a disability, and the other be the family member of an individual with a disability. The three-year, staggered co-chair positions carry with them a slot on AUCD's Board of Directors.

Full Council membership consists of one representative of each UCEDD, designated by that UCEDD's director. The Council continues to strive to meet its long-term goal of full membership.

In 2003-2004, AUCD made a commitment to revitalize the role of COCA within the network. Past President of AUCD, David Johnson appointed an ad hoc COCA Workgroup. This workgroup, chaired by Carl Calkins, solicited feedback from the AUCD network and met several times to develop a renewed vision to strengthen the role of COCA. A final set of recommendations was produced and presented to the board and UCEDD Directors at the UCEDD Directors' retreat May 2-3, 2005 in Chicago, IL.

 

 
 

COLA Leadership

 

 

 
 

NEW ON THE COLA
WEB PAGES

 

9/20/2021

AUCD's 12 Children's Mental Health Champions Complete Their Projects for the 2020-2021 Year

In 2020, the Association of University Centers on Disabilities (AUCD) expanded its National Center on Disability in Public Health efforts with the launch of a new pilot program, Children's Mental Health Champions. This effort was made possible through a cooperative agreement with the Centers for Disease Control and Prevention (CDC). Twelve Champions were selected, representing American Samoa, California, Colorado, Connecticut, Georgia, Kentucky, Maine, New Mexico, North Carolina, South Dakota, and Virginia, to serve as liaisons to the CDC's Children's Mental Health project in 2020-2021.

 
 

8/12/2021

AIR-P Scholars & Pilot and Feasibility Funding Program

Call for Applications and Proposals

The Autism Intervention Network on Physical Health (AIR-P) seeks applications for the AIR-P Scholars & Pilot and Feasibility funding program during January-December 2022 project year. Proposals must address a topic or topics related to autism and physical health with a focus on enhancing the health and well-being of autistic people. Preference will be given to projects with an emphasis on underserved groups.

 
 

9/22/2021

Coming Soon! AUCD Launches a New Podcast

We are proud to present AUCD's new podcast-- AUCD Network Narratives: Real Stories from Our Members. The podcast shares real stories from network members who are working to change systems and structures that impact people with disabilities. This first season focuses on network members promoting equity, diversity, and inclusion and reducing disparities for Black and brown disabled people. Be on the look in the next couple of weeks when our first episode will air.

 
 

9/17/2021

Get the Facts: Managing Resources to Help Youth with Disabilities Transition from School to Employment

Employment First Massachusetts Partnership for Transition to Employment (MPTE) has released a series of fact sheets for family members and support providers of youth with disabilities who are transitioning to competitive integrated employment.

 
 

9/17/2021

New Nationally Certified Training for Vocational Rehabilitation Leaders

The Institute for Community Inclusion (ICI) at the University of Massachusetts Boston is announcing the Transformational Rehabilitation Leader Training (TRLT), a new, nationally certified, professional education program in partnership with the Commission on Rehabilitation Counselor Certification (CRCC), and the University of Wisconsin-Stout Vocational Rehabilitation Institute (SVRI).

 
 

9/16/2021

Request for Application: Trainee and Training Director Stipend Opportunity for Local Vaccine Outreach

Submission deadline is extended to 5 pm ET on September 21, 2021.

Through an upcoming single-source award from the Centers for Disease Control and Prevention (CDC) to Association of University Centers on Disabilities (AUCD), a selection of Trainees and Training Directors from the AUCD network members will conduct COVID-19 vaccine outreach with the disability community as part of a larger effort, Local Vaccine Outreach with the Disability Community. Successful applicants will propose innovative message delivery streams and local modalities to reach people with disabilities (including individuals not connected to service delivery systems), their families, and Direct Support Professionals (DSPs), with the overarching goal of boosting COVID-19 vaccination rates in the disability community.

 
 

9/15/2021

The Center on Disability and Development Joins Forces to Make Sure People with Disabilities Can Get Vaccinated

The Center on Disability and Development joins forces to make sure people with disabilities can get vaccinated The CDD has joined forces with our DD network partners in Texas and other organizations to make sure that people with disabilities have the opportunity to get vaccinated!

 
 

9/15/2021

Tips for Keeping Kids Safe as They Head Back to School During COVID-19

Worried about your child being exposed to COVID-19 you can take to ensure they have a safe return to school. Produced by the University of Cincinnati UCEDD.

 
 

9/15/2021

TTAP Battles Social Isolation with Connectivity Kits

In light of the pandemic and increased isolation in our communities, the Aging and Disability Resources Center of the Capital Area (ADRC) and the Capital Area Council of Governments (CAPCOG) has partnered with the Texas Technology Access Program (TTAP) to create Connectivity Kits to help reduce social isolation by increasing connectivity for older persons, persons with disabilities, and their caregivers.

 
 

9/7/2021

FEMA Multimedia Resources and Links in Multiple Languages for Ida Response

As clean up efforts begin across several states, this page from FEMA offers general and state-specific information and resources related to applying for assistance, post-storm safety and news and multimedia products.

 
 

9/6/2021

Mailman Center Awarded Two FAAST Grants to Support Assistive Technology Program

As part of its mission to improve the quality of life for Floridians with disabilities by increasing access to assistive technology, the Florida Alliance for Assistive Services and Technology, Inc. (FAAST) has awarded two grants to support the Mailman Center for Child Development's Assistive Technology program.

 
 

9/3/2021

Request for Application: Regional Hub for Local Vaccine Outreach

Through an upcoming single-source award from the Centers for Disease Control and Prevention (CDC) to Association of University Centers on Disabilities (AUCD), a selection of up to four (4) centers or programs from the AUCD network members will lead regional hubs to coordinate local and regional COVID-19 vaccine outreach with the disability community as part of a larger effort, Local Vaccine Outreach with the Disability Community. Successful applicants will propose innovative strategies to rapidly share effective message delivery streams and local modalities to reach people with disabilities (including individuals not connected to service delivery systems), their families, and Direct Support Professionals (DSPs), with the overarching goal of boosting COVID-19 vaccination rates in the disability community.

 
 

9/2/2021

Connectivity Kits at Texas Center for Disability Studies

The Texas Technology Access Program, within the Texas Center for Disability Studies at the University of Texas at Austin collaborated with the local Aging and Disability Resource Center (Capital Area Council of Governments) to assemble connectivity kits for persons with disabilities, older adults, and their caregivers. The intent is to reduce isolation while connecting people to their community and to telemedicine.

 
 

9/2/2021

Meet Members of Georgetown University Center for Excellence in Developmental Disabilities Advisory Council

The Georgetown University Center for Excellence in Developmental Disabilities (GUCEDD) is highlighting members of its Advisory Council (GAC) through a series of videos. The three newest members to participate are Wilma Elen, a parent of a person with an intellectual/developmental disability (IDD); Rebecca Salon an advisor to Project ACTION! and a representative from the State Office on Policy, Planning, and Innovation for the District of Columbia's Department on Disability Services; and Robert Kennedy, a member of Project ACTION!, an advocate, and a person with the lived experience of developmental disability.

 
 
Blue waves are in the background behind white text that reads,

9/2/2021

MI-DDI and FEMA Flood Disaster Speakers Panel

Michigan Developmental Disabilities Institute (MI-DDI) joined the Federal Emergency Management Agency (FEMA) to host a webinar featuring several speakers from FEMA on August 25, 2021. The session focused on resources and aid available to Michiganders affected by the severe storms and floods of June 2021. The webinar and links to resources and information can be accessed on MI-DDI's video resources page.

 
 

9/1/2021

Nisonger Center & AUCD Professional Fellows Win U.S. State Department Award

The U.S. Department of State has awarded a $32,000 AEIF grant to AUCD Professional Fellows alumni and a Nisonger Center team led by Dr. Margo Izzo and Dr. Paula Rabidoux. The AEIF award (U.S. Department of State Alumni Engagement Innovation Fund) will sponsor the expansion of an online inclusive education & employment training partnership that connects Ohio LEND faculty, staff, and trainees to teachers in Tanzania's schools.

 
 

9/1/2021

Summer Enrichment Academy 2021: It's Time to Find the Superhero in You

When you think of summertime, you probably think of taking vacations, soaking up the sun, spending time with family and friends, and having time away from school. In Mississippi, 22 youth and young adult students with disabilities chose to make their summer a work learning experience instead. These students attended the ToTAL (Transition of Teens to Adult Life) 2021 Summer Enrichment Academy.

 
 

9/1/2021

UNH Approved for $4.86 Million in Research Funding for Study of Telehealth Services on Mental Health Outcomes for People with IDD

Research associate professor Joan B. Beasley and a research team from the Center for START Services at the Institute on Disability (IOD) at UNH has been approved for a $4.86 million funding award by the Patient-Centered Outcomes Research Institute (PCORI) for their study: Evaluation of Telehealth Services on Mental Health Outcomes for People with Intellectual and Developmental Disabilities. The project will include partners from the University of Florida and Johns Hopkins Kennedy Krieger Institute

 
 

8/30/2021

Crip Camp Screening and Conversation with Judy Heumann

IOD staff and faculty recently participated in a unique professional development opportunity with renowned disability rights activist, advocate, and author Judy Heumann. The virtual event kicked off with a screening of the ground-breaking, Academy-award nominated film Crip Camp-in which Judy starred-and was followed by an enriching discussion on the creation of the film and Judy's thoughts on the current state of disability in America.

 
 

8/30/2021

Dan Habib Accepts New Role at the Westchester Institute for Human Development

Dan Habib, Project Director and Filmmaker at the UNH Institute on Disability (IOD), has accepted the position of Inclusive Communities Project Director at the Westchester Institute for Human Development (WIHD) in Valhalla, NY. Habib assumed his new role on July 26.

 
 

8/30/2021

Guidelines to Improve Mental Health Treatment for People with Intellectual and Developmental Disabilities

The Center for START Services� (CSS) IDD-MH Prescriber Guidelines is designed to improve health outcomes by aligning primary and mental health practices with lived, user experience. Contrary to existing psychiatric prescriber�s guidelines, CSS engaged prescribers, mental health clinicians, and people with lived experiences throughout the study�s research and development process.

 
 

8/30/2021

IOD Programs Celebrate Major Milestones

The IOD celebrated two major programmatic milestones this summer. In the month of June, the Center on Aging and Community Living (CACL) recognized 10 years of ensuring all New Hampshire residents have access to person-centered options to allow them to live and age in the communities of their choice. Since 2011, CACL, a collaboration between the Institute on Disability (IOD) and the Institute for Health Policy and Practice (IHPP) at the University of New Hampshire, has been actively engaged in projects related to aging and long-term care.

 
 

8/30/2021

MMI Camp Uses VR Games to Achieve Therapy Goals

In August, the Munroe-Meyer Institute held a two-week Hand Arm Bimanual Intensive Training (HABIT) camp.The institute has held the camp three times in the past. The purpose of the camp is to allow children with cerebral palsy and other conditions to work on bimanual therapy (using both hands to complete a task) in the form of play. This year, however, there was a new twist with the introduction of virtual reality games, designed by James Gehringer, PhD, and the MMI Virtual Reality Lab, that incorporated the therapeutic play concept into video games.

 
 

8/30/2021

Nisonger Center & JPMorgan Chase Collaboration

Six students from The Ohio State University and Columbus State Community College participated in paid internships through the Autism At Work program with JPMorgan Chase Consumer & Community Banking at their Polaris Campus.

 
 
A headshot photo of Beth Malow, a middle-aged white woman with chin-length brown hair, a pink sweater, and a black beaded necklace. Another headshot photo of Jeff Neul, a middle-aged white man with red hair, including a mustache and beard, wearing a

8/30/2021

Vanderbilt Kennedy Center Efforts Enhance Inclusivity in Clinical Trials

Following the Vanderbilt Kennedy Center�s (VKC) (TN IDDRC, UCEDD, LEND) renewal as a national Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center in 2020, the center underwent a shuffling of their four scientific cores that support basic and applied research on intellectual and developmental disabilities (IDD).

 
 

8/24/2021

MI-DDI Spanish Language COVID-19 Vaccine Infographics

Michigan Developmental Disabilities Institute is excited to share six Spanish plain language infographics on the COVID-19 vaccine. Access these resources on their COVID-19 Vaccine Confidence landing page, under "Plain Language Infographics (Spanish)". Help share these resources to promote vaccine confidence!

 

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