Council on Leadership in Advocacy (COLA)

 

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The AUCD Board of Directors has established a number of Councils and Committees that are made up of experts in the field to help the Board address emerging trends and issues, and to facilitate communication across and beyond the AUCD network. The Council on Leadership in Advocacy, also known as COLA, is made up of individuals with disabilities and family members from each University Center across the AUCD network.  COLA members are involved in Community Advisory Councils at University Centers for Excellence in Developmental Disabilities (UCEDDs), AUCD Councils and Committees, AUCD Special Interest Groups, and other advocacy opportunities.  Membership is open to anyone in the AUCD network. However, each center will designate an individual representative who will cast one vote when a matter before the Council requires such action.

 

 

 
 

Mission

The mission of the AUCD Council on Leadership in Advocacy (COLA) is to advise and assist the AUCD network to enhance the quality of life for individuals with developmental disabilities and their families. COLA works to enhance AUCD by fostering and supporting current and new leaders with lived experience of disability, including their family members in order to promote this same leadership in their programs, communities, and regions, and to serve in liaison roles with local disability leadership. The Council helps the association to:

  • Build effective partnerships with other AUCD Councils and Committees, federal agencies, and other national disability groups.
  • Build the capacity of local University Center Consumer Advisory Committees (CACs), including identifying needs for assistance, providing technical assistance, and disseminating information about exemplary and innovative practices.
  • Envision, actively advocate for, and disseminate information about the next generation of policy and practice that will help make the promise of full participation a reality.
  • Develop leaders and mentors that build the capacity of the network to affect change at the local, state, and national levels.
  • Assist in the development of standards for participation of people with disabilities and family members in UCEDD education, research, and service programs and in AUCD functions.
  • Serve as a model and resource for others desiring to infuse the participation people with disabilities and family members into program planning, research, and evaluation.

 

 

 
 

Purpose

The purpose of the Council is to enhance the Association by fostering current and new leaders with lived experience of disability, including their family members, to promote leadership in their programs and communities. Council membership will expand to include directors, faculty, staff, and advisors at center programs, and CAC members.

 

 
 

History

The Council on Consumer Affairs first convened in the fall of 1994; the name was later changed to the Council on Consumer Advocacy. The Council was formed as a result of AUCD's (formerly AAUAP) increasing recognition of the importance of receiving consistent and ongoing consumer feedback. Start-up activities were funded by the Administration on Developmental Disabilities, through a Project of National Significance entitled "Leadership and Choices." Principle support was provided by Bruce Eddy of AUCD and Carl Calkins of the University of Missouri/Kansas City, Missouri's UCEDD.

The Council leadership structure includes several internal committees and two co-chairs. 1998 By-Laws stipulate that one co-chair must be an individual with a disability, and the other be the family member of an individual with a disability. The three-year, staggered co-chair positions carry with them a slot on AUCD's Board of Directors.

Full Council membership consists of one representative of each UCEDD, designated by that UCEDD's director. The Council continues to strive to meet its long-term goal of full membership.

In 2003-2004, AUCD made a commitment to revitalize the role of COCA within the network. Past President of AUCD, David Johnson appointed an ad hoc COCA Workgroup. This workgroup, chaired by Carl Calkins, solicited feedback from the AUCD network and met several times to develop a renewed vision to strengthen the role of COCA. A final set of recommendations was produced and presented to the board and UCEDD Directors at the UCEDD Directors' retreat May 2-3, 2005 in Chicago, IL.

 

 
 

COLA Leadership

 

 

 
 

NEW ON THE COLA
WEB PAGES

 

8/14/2020

I Vote Because...

AUCD is excited to join partners across the disability community working to increase the political power of people with disabilities by sharing resources, getting folks registered, supporting voters in navigating the planning processes making sure that we are all voters in 2020. This effort included plans to continuously share information and resources up to election day 2020.

 
 

8/11/2020

Save-the-Date Virtual Room to Grow: Journey to Cultural and Linguistic Competency Conference

Save-the-Date September 22, 2020 8:30 AM - 4:00 PM Virtual Room to Grow: 10th Year Journey to Cultural and Linguistic Competency Conference "Understanding and Using Equity Approaches to Promote Health, Leadership, and Well-Being" Registration will be available at www.kennedykrieger.org/CenterforDiversity by July 27,2020 For more information, please email [email protected]

pdf File Event Flyer [download]
 
 

8/7/2020

2020 Summer Enrichment Academy Goes Virtual

Summer typically provides opportunities for youth and young adults to go on vacations, soak up the sun, spend time with family and friends, and have a break from school. In Mississippi, 19 youth and young adults with disabilities chose to make their summer a work learning experience instead.

 
 

8/7/2020

ADA 30th: Community Voices Series

The Texas Center for Disability Studies is excited to share our ADA 30: Community Voices Series to celebrate the 30th anniversary of the Americans with Disabilities Act. Part 1 of this series highlights what the ADA means to local self advocates, activists, and community leaders. Stay tuned for part two!

 
 

8/7/2020

ICI Tools for Inclusion:Employment and Employment Supports: A Guide to Ensuring Informed Choice for Individuals with Disabilities

As individuals with disabilities consider their employment options, questions often arise: Does the person want to work in competitive integrated employment? What kind of a job do they want? What are their career interests? And who is really making the decision: Is it the individual, or others on their behalf?

 
 

8/7/2020

New Research Brief: COVID-19 and disability in rural areas

To learn more about COVID-19 impacts on rural people with disabilities, RTC:Rural conducted a survey in late April/early May to explore rural and urban differences in COVID-19 health risks, adherence to public health recommendations, and trust in different information sources. We focused on people with disabilities because they often experience higher rates of secondary health conditions that place them at heightened risk of COVID-19 complications.

 
 

8/7/2020

Now Available! COVID-19: Anti-discrimination Training for Triage Teams

The Lifespan Inter-professional Collaborative (IPC), along with our Disability Awareness and Sensitivity in Healthcare (DASH) leads, created a brief on-line training course for the triage teams that may have to be activated in case of a shortage of ventilators.

 
 

8/7/2020

Partnership Helps Students "Self-Determine" Ways to Improve Learning

For three years, a collaboration between Free State High School and researchers at the KU Center on Developmental Disabilities has grown to include more than 20 teachers at the school and hundreds of students with and without disabilities. It is led by KUCDD director, Karrie Shogren. "We intuitively know that identifying goals and things we want to work towards are critical for us to move forward in our lives," Shogren said. "We've spent a lot of time in disability supports and in schools in general talking to students about goals" even getting them to start being able to identify those for themselves. But what they've never really had is the strategy to move forward

 
 

8/7/2020

Three New Briefs from ThinkWork

Three new briefs from ThinkWork this month covering topics on; Finding Tasks and Jobs; DataNote Examines Employemnt Rates Among SSI Recipient and Comprehensive Model of Employment Support.

 
 

8/7/2020

UK Human Development Institute Commemorates 30th Anniversary of the ADA

Staff from the UK Human Development Institute reflect on the 30th Anniversary of the Americans with Disabilities Act (ADA) signed in to law by President George H. W. Bush on July 26,1990. The ADA provides protections of the rights and opportunities for people with disabilities in our nation. Although the ADA has brought progress, our work has just begun.

 
 

8/7/2020

University of Kentucky HDI Leads Effort to Increase Higher Ed Access for Students With Intellectual, Developmental Disabilities

The University of Kentucky has a new opportunity to provide statewide leadership focused on increasing higher education access and success for students with intellectual and developmental disabilities (I/DD).

 
 

8/7/2020

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) publishes Discovery e-newsletter dedicated to COVID-19 response

The Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) recently published its annual Discovery newsletter in June, with its theme being "Research, Training, and Service from a Distance: The Vanderbilt Kennedy Center Adapts and Innovates During COVID-19"

 

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