Council on Leadership in Advocacy (COLA)

 

Purpose

Download this one page flyer about COLA to print or share.               

The purpose of the Council on Leadership and Advocacy (COLA) is to enhance the Association of University Centers on Disabilities by fostering current and new leaders with lived experience of disability, including their family members, to promote leadership in their programs and communities. Council membership will expand to include directors, faculty, staff, and advisers at center programs, and CAC members.

 
 

How COLA Relates to AUCD and Its Work

COLA works to enhance AUCD by fostering and supporting current and new leaders with lived experience of disability, including their family members in order to promote this same leadership in their programs, communities, and regions, and to serve in liaison roles with local disability leadership. The Council helps the association to:

  • Build effective partnerships with other AUCD Councils and Committees, federal agencies, and other national disability groups.
  • Build the capacity of UCEDD Consumer Advisory Committees.
  • Develop leaders and mentors that build the capacity of the network to affect change at the local, state, and national levels.
  • Assist in the development of standards for participation of people with disabilities and family members in AUCD network centers and programs
  • People with disabilities and family members participate in program planning, research, and evaluation.

 
 

Membership

The Council on Leadership in Advocacy, also known as COLA, is made up of individuals with disabilities and family members from each AUCD network center and program. COLA members are involved in Community Advisory Councils at UCEDDs, AUCD Councils and Committees, AUCD Special Interest Groups, and other advocacy opportunities. Membership is open to anyone in the AUCD network. However, each center will designate an individual representative who will cast one vote when a matter before the Council requires such action.

 
 

2018 Focus Areas

The 2018 COLA annual plan has been drafted to align with the AUCD 2018 Strategic Map.

 

  • Diversity & Equity: Utilize network resources to support COLA membership.
  • Leadership: COLA membership champions and model diversity, equity, and inclusion.
  • Research: 1) Increase visibility of COLA within AUCD network; 2) COLA is an integral partner to strengthen network engagement and collaboration; 3) People with I/DD &/or family members lead or direct research within AUCD network.
  • Policy: COLA contributes to AUCD network policy, practices, and research.
 
 

COLA Leadership

 

 

 
 

Upcoming Events
of Interest to
COCA Members

More Events >

 
 

NEW ON THE COLA
WEB PAGES

 

5/18/2020

Communication is Vital: Learn how the WI UCEDD is helping pave the way for intubated COVID-19 patients

At the Waisman Center, home of Wisconsin's LEND, IDDRC, and UCEDD, clinicians in the Communication Aids and Systems Clinic (CASC) join a new international task force designed to help patients on ventilators communicate while intubated. CASC is one of 10 different specialty clinics within the Waisman Center and offers specialized services for those who benefit from augmentative and alternative communication aids (AAC). One clinician in CASC, Sarah Marshall, a speech-language pathologist (SLP), has been working with the international task force to develop free communication supports and tools for patients on ventilators due to COVID-19. For patient's suffering from this potentially life-threatening illness, communication with providers and loved ones can be vital. Due to restrictions placed on visitors and the nature of intubation, patients needing intubation and placed on ventilators often find themselves alone and unable to communicate their needs.

 
 

5/16/2020

STEP UP Continues Engagement Virtually

COVID-19 has dramatically impacted the ability to get together in person for socialization and community service . . . no more recreational events, no going to the mall, no going to the movies, no going to the parks, no more monthly meet ups for different socialization opportunities, and no more community service events. This has certainly affected our inclusive organization, STEP UP to Leadership Advisory Council, a leadership and service council for individuals with and without disabilities. As everyone has moved to social distancing, STEP UP members have expressed their need for social interactions with their peers, weekly routines, and community engagement. The Institute for Disability Studies (IDS) is offering something new that will keep the STEP UP members engaged and active in a different way.

 
 

5/13/2020

Paths Program

The PATHS Program was an amazing growth experience for me. But I almost didn't even go. In fact, after visiting the PATHS open house day in Feb 2019, I told my mom that it looked like a nice program but the Texas A&M campus was way too big for me. Plus It would require me to navigate public transportation which I had never done before and I was terrified of doing it . But a week later I got in an argument with my little sister and I asked my mom where that PATHS application was! Now I am so glad I went ! It wasn't easy at first but Bridge 2 Career truly helped guide me into the right direction and grew in so many ways. By the end of Bridge 2 Careers I had fallen in love with CSTX and my mentors. I couldn't wait to get back in the fall to start the PATHS program. I was able to navigate the large Texas A&M campus experienced dorm life, learned about the neat TAMU traditions

 
 

5/8/2020

What We Need - Brenda Stenglein

Brenda Stenglein lives in Ashford Connecticut, a small town in the rural eastern part of the state. She is a 2020 graduate of LEND and a retired special educator. As her business was failing due to the economic impact of COVID coupled with the cold spring, Brenda worried that all of the plants in her greenhouse would die. She wanted to do something special for nurses during Nurse Appreciation week. So she loaded up her truck with all the plants and delivered them to St. Francis Hospital in Hartford as a gesture of support to all the nurses who are working so hard during the pandemic.

 
 

4/28/2020

School for Global Inclusion and Social Development / Asian American Studies

Recent School for Global Inclusion and Social Development graduate Theresa Tran was profiled in the Vietnamese American Initiative for Development's (VietAID) latest newsletter. The bilingual profile highlighted her various roles in the community and how those responsibilities impacted her life.

 
 

4/28/2020

Self-Care Resources from MDDI

Now, more than ever, self-care is one of the most important types of care. Check out Michigan Developmental Disabilities Institute's (MI-DDI) compilation of resources to use while self-distancing. Resources are categorized to target your physical, mental, emotional, and spiritual well-being.

 
 

4/27/2020

OHSU UCEDD Research Team Featured by Bloomberg News

The Institute on Development & Disability at Oregon Health & Science University (OHSU) UCEDD research team specializing in Assistive Technology was featured by Bloomberg News for their groundbreaking Brain-Computer Interface work. The REKNEW lab, led by researcher and UCEDD Co-director, Melanie Fried-Oken, Ph.D., CCC/Sp, specializes in developing technology to address communication needs for people with severe disabilities, such as locked-in syndrome.

 
 

4/27/2020

The Center for Leadership in Disability Hosts Positive Behavior Support Workshop for Caregivers

The Center for Leadership in Disability (CLD) in partnership with the Georgia Department of Public Health offered a series of Positive Behavior Support Parent Academies for caregivers of children aged three- to five-years-old who engaged in persistent, challenging behaviors. The Positive Behavior Support Parent Academy is facilitated over five in-person sessions and includes between-session assignments. Each session includes didactic content, hands-on activities, group discussions, and peer-to-peer support. This format allows families to connect with and support one another and build relationships with others in their communities.

 

More >