Council on Leadership in Advocacy (COLA)

 

Download this one page flyer about COLA to print or share.               

The AUCD Board of Directors has established a number of Councils and Committees that are made up of experts in the field to help the Board address emerging trends and issues, and to facilitate communication across and beyond the AUCD network. The Council on Leadership in Advocacy, also known as COLA, is made up of individuals with disabilities and family members from each University Center across the AUCD network.  COLA members are involved in Community Advisory Councils at University Centers for Excellence in Developmental Disabilities (UCEDDs), AUCD Councils and Committees, AUCD Special Interest Groups, and other advocacy opportunities.  Membership is open to anyone in the AUCD network. However, each center will designate an individual representative who will cast one vote when a matter before the Council requires such action.

 

 

 
 

Mission

The mission of the AUCD Council on Leadership in Advocacy (COLA) is to advise and assist the AUCD network to enhance the quality of life for individuals with developmental disabilities and their families. COLA works to enhance AUCD by fostering and supporting current and new leaders with lived experience of disability, including their family members in order to promote this same leadership in their programs, communities, and regions, and to serve in liaison roles with local disability leadership. The Council helps the association to:

  • Build effective partnerships with other AUCD Councils and Committees, federal agencies, and other national disability groups.
  • Build the capacity of local University Center Consumer Advisory Committees (CACs), including identifying needs for assistance, providing technical assistance, and disseminating information about exemplary and innovative practices.
  • Envision, actively advocate for, and disseminate information about the next generation of policy and practice that will help make the promise of full participation a reality.
  • Develop leaders and mentors that build the capacity of the network to affect change at the local, state, and national levels.
  • Assist in the development of standards for participation of people with disabilities and family members in UCEDD education, research, and service programs and in AUCD functions.
  • Serve as a model and resource for others desiring to infuse the participation people with disabilities and family members into program planning, research, and evaluation.

 

 

 
 

Purpose

The purpose of the Council is to enhance the Association by fostering current and new leaders with lived experience of disability, including their family members, to promote leadership in their programs and communities. Council membership will expand to include directors, faculty, staff, and advisors at center programs, and CAC members.

 

 
 

History

The Council on Consumer Affairs first convened in the fall of 1994; the name was later changed to the Council on Consumer Advocacy. The Council was formed as a result of AUCD's (formerly AAUAP) increasing recognition of the importance of receiving consistent and ongoing consumer feedback. Start-up activities were funded by the Administration on Developmental Disabilities, through a Project of National Significance entitled "Leadership and Choices." Principle support was provided by Bruce Eddy of AUCD and Carl Calkins of the University of Missouri/Kansas City, Missouri's UCEDD.

The Council leadership structure includes several internal committees and two co-chairs. 1998 By-Laws stipulate that one co-chair must be an individual with a disability, and the other be the family member of an individual with a disability. The three-year, staggered co-chair positions carry with them a slot on AUCD's Board of Directors.

Full Council membership consists of one representative of each UCEDD, designated by that UCEDD's director. The Council continues to strive to meet its long-term goal of full membership.

In 2003-2004, AUCD made a commitment to revitalize the role of COCA within the network. Past President of AUCD, David Johnson appointed an ad hoc COCA Workgroup. This workgroup, chaired by Carl Calkins, solicited feedback from the AUCD network and met several times to develop a renewed vision to strengthen the role of COCA. A final set of recommendations was produced and presented to the board and UCEDD Directors at the UCEDD Directors' retreat May 2-3, 2005 in Chicago, IL.

 

 
 

COLA Leadership

 

 

 
 

NEW ON THE COLA
WEB PAGES

 

10/19/2020

Telehealth: What is it? And how to make it work for you!

The University Center for Excellence in Developmental Disabilities at the Oregon Health & Science University is excited to share a recently created series of 4 animated video modules on Telehealth. They were designed for adults with I/DD and, more specifically, for people who use communication supports. They would also be appropriate for kids (and families), and individuals who experience cognitive or language or literacy challenges.

 
 

10/13/2020

MN UCEDD Pinpoints Autism's Reach

To better quantify the prevalence of autism across Minnesota, investigators at University of Minnesota's Institute on Community Integration (MN UCEDD) will tap into large statewide education and social services databases under a new grant from the Centers for Disease Control and Prevention (CDC).

 
 

10/13/2020

I Vote Because...

AUCD is excited to join partners across the disability community working to increase the political power of people with disabilities by sharing resources, getting folks registered, supporting voters in navigating the planning processes, and making sure that we are all voters in 2020. This effort includes plans to continuously share information and resources up to Election Day: November 3, 2020.

 
 

10/14/2020

TOPS Program Celebrates Ten Years of Promoting Inclusion at Ohio State

The Transitions Options in Postsecondary Settings (TOPS) Program at The Ohio State University Nisonger Center is celebrating its tenth year of providing alternative college experiences for young adults with intellectual and developmental disabilities. O

 
 

10/14/2020

US Commission Urges Repeal of Subminimum Wage After VT Visit

In a report published on September 17, 2020, the U.S. Commission on Civil Rights recommended repealing section 14(c) of the Fair Labor Standards Act which permits employers to pay less than the minimum wage to individuals with disabilities. During the agency's investigation, they heard testimony from Dr. Bryan Dague before coming to Vermont as one of two field visits to employment and service provision sites.

 
 

10/3/2020

MNLEND Trainee jumps into coordinating a public health response to COVID with community partners

Whitney Terrill typically supports Minnesotans living with disabilities to access home and community based services through her role at the Minnesota Department of Human Services, Disability Services Division Fiscal Policy Team. Whitney is deeply interested in value and outcomes based payment design, and currently works on a legislatively mandated project to explore options for how Minnesota might pay for disability services in the future.

 
 

10/2/2020

Edward Esbeck Leads the Way for Iowa's Self-Advocates

Before 2020, Iowa's LEND program did not have a Self-Advocacy Coordinator serving as Core Faculty for trainees in the program. Before 2019, Iowa's UCEDD, the Center for Disabilities and Development (CDD), did not have a Self-Advocacy Coordinator as a member of its staff. Before 2017, Iowa LEND had never had a Self-Advocacy Trainee. But since 2016, when he became a member of the UCEDD's Community Advisory Committee, CDD has had Ed Esbeck. For the past year, since he was hired as CDD's Self-Advocacy Coordinator in the fall of 2019, Esbeck has championed inclusion for Iowa LEND, and has led the way for more self-advocates to become leaders, as he has.

 
 

10/2/2020

Georgia State University UCEDD Trainees Step-up for COVID-Tracing Research

Universities across the country are adapting to take on the unique challenges COVID-19 has brought to their campuses and larger communities. The Georgia Department of Public Health (GaDPH) offered opportunities for public health students and alumni at Georgia State University (GSU) to train and serve as contact tracers who work to track and prevent further spread of COVID-19. Students were assigned to work as contract tracers within any one of the 18 public health districts in Georgia. Three students affiliated with the Center for Leadership in Disability (CLD) at GSU have engaged in the volunteer-led contact tracing effort.

 
 

10/2/2020

Staying Connected During COVID-19: Waisman Center Outreach Supports AAC Remotely

The Communication Development Program (CDP) is an outreach program of the Waisman Center UCEDD at University of Wisconsin, Madison. This program was developed over 30 years ago in partnership with the Dane County Department of Human Services, and specifically the Intellectual and Developmental Disabilities (IDD) unit. The mission of CDP is to enhance community participation, health, safety, and self-determination for individuals with disabilities through specialized Augmentative and Alternative Communication (AAC) and Assistive Technology (AT) services.

 
 

10/2/2020

Transition Supports for Parents with Intellectual and Developmental Disabilities Partnership (Georgetown UCEDD)

The Georgetown University Center for Excellence in Developmental Disabilities (GUCEDD) is one of 10 programs awarded a Community Based Transition Partnership Planning grant from the Administration for Community Living (ACL), Administration on Disabilities (AoD) (https://content.govdelivery.com/accounts/USACL/bulletins/29bbc5e). The goal of the grant is to convene a partnership in the District of Columbia to develop a sustainable plan that addresses the unique needs of parents with intellectual and developmental disabilities (IDD) to support the transition of their children with and without disabilities throughout the life course.

 
 

9/29/2020

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) investigators to lead $5 million NSF-funded expansion of ASD workforce program

The National Science Foundation has awarded a highly competitive $5 million grant to multiple Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) (VKC) researchers to greatly expand a project for creating novel artificial intelligence (AI) technology and tools and platforms that train and support individuals with autism spectrum disorders in the workplace.

 
 

9/29/2020

WVU CED Launches New Website to Provide Resources for Families Impacted by Substance Use Disorders

The WVU Center for Excellence in Disabilities (CED) launched a new website designed to provide resources to help educate families and providers on the effects of substance use on the family unit and child development.

 
 

9/28/2020

America at a glance: Social isolation and loneliness during the first wave of COVID-19 Organization: RTC:Rural

America at a glance: Social isolation and loneliness Before the current pandemic, people with disabilities reported significantly higher rates of social isolation and loneliness than those without disabilities. When restrictions are put in place to help protect people from COVID-19, what happens to these rates? RTC:Rural's newest research brief explores how COVID-19 and public health responses may contribute to feelings of social isolation and loneliness among people with disabilities.

 
 

9/23/2020

Office of Health, Equity, Inclusion and Diversity Opens at Kennedy Krieger

The office is preceded by yearslong efforts encouraging equity, inclusion and diversity at the Institute and in the community.

Kennedy Krieger Institute's new Office of Health, Equity, Inclusion and Diversity (O-HEID), established last month, represents a significant step in the Institute's journey to cultivate and encourage a community of equity, inclusion and diversity.

 

More >