Council on Research and Evaluation (CORE)

 

NEW on the CORE Web Pages

 

4/16/2018

AUCD2018: You're Invited

Colleagues, I am excited to invite you to join me in Washington, DC, on November 11-14 for the 2018 AUCD Conference - We ALL Belong Here! Achieving Inclusive Communities. This year's theme has a strong message of belonging and inclusion. I cannot think of a time in my life when it was more important to remember, celebrate, and remind others that all human beings have value, and a right to be included in their communities. This means opportunity, access, and equity in education, housing, employment, healthcare, faith communities, transportation, activities, and all aspects of community living. I am very much ...

 
 

4/16/2018

Submit a Proposal for AUCD 2018 Today

Deadline: June 15

The AUCD Conference is one of the nation's premier places to highlight your work. Over 200 different presentations will be accepted to the conference in several different types of sessions, formatted for maximum visibility and interaction with attendees. Proposals are encouraged from students, self-advocates, family leaders, clinicians, and researchers in over 25 topics. Don't miss your chance: submit a proposal today!

 
 

4/10/2018

Mid-life Social Outcomes for a Population-based Sample of Adults with ASD

Adults with autism spectrum disorders (ASD) fall short of social outcomes of non‐ASD peers in mid‐life, as documented by currently published research. The aim of the current study was to extend what is known about social functioning, employment, independent living, and use of social services by examining details of the current life status for a population‐based sample of adults with ASD (mean age = 35.5 years, range = 22.2�51.4). We collected outcome data via direct assessment and informant report for 169 individuals. Three‐fourths of the sample had cognitive abilities in the intellectually disabled range. Social functioning outcomes, as a single measure, mirror those reported previously for other samples, including samples with a high proportion of individuals with normal range intellectual abilities, with 20% achieving the most independent outcomes and 46% requiring high levels of support across most life areas. Participant subgroups who achieved maximal outcomes represented a range of social and intellectual abilities for several outcome metrics. Participants used high levels of public and private supports, yet specific areas of clear, unmet need were also identified.

 
 

4/9/2018

SPARK: A US Cohort of 50,000 Families to Accelerate Autism Research

The Simons Foundation Autism Research Initiative (SFARI) has launched SPARKForAutism.org, a dynamic platform that is engaging thousands of individuals with autism spectrum disorder (ASD) and connecting them to researchers. By making all data accessible, SPARK seeks to increase our understanding of ASD and accelerate new supports and treatments for ASD.

 
 

3/29/2018

Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) TRIAD Study Affirms Effectiveness, Promise of Telemedicine for Autism Evaluations

Researchers at the Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) Treatment and Research Institute for Autism Spectrum Disorders (TRIAD) have found that autism spectrum disorder (ASD) can be accurately diagnosed in young children via remote, telemedicine assessments, a method that could significantly increase access and reduce wait times for autism services.

 
 

3/7/2018

Autism CARES/LEND Act Funding Alert

The President's FY 2019 Budget Request eliminates funding for the Health Resources Services Administration (HRSA) Autism CARES Act programs. This $47 million cut includes the $31.3 million appropriation for LEND programs. The national network of LEND programs would be eliminated. LEND directors, health professionals, trainees, families and allies must educate their Members of Congress about why this training program is important and why it must not be eliminated.

 
 

3/7/2018

UCEDD Funding Alert

The President's FY 2019 Budget Request cuts the funding for UCEDDs by $6 million from $39 to $33 million, or more than 15%. In fact, a $5.5 million increase over the expected FY 2018 level is needed to meet the growth of scope of work as related to assisting states to effectively implement recently enacted Federal laws, and the growth of need around autism, Zika, and neonatal abstinence syndrome. UCEDD directors, health professionals, trainees, families, and allies must educate their Members of Congress about why this training program is important, how it serves your state, and why increased funding is needed.

 
 

3/2/2018

Continue to Educate your Members of Congress on the importance of the Money Follows the Person (MFP) Program

Help people living in nursing facilities and other institutional settings move back into their community!

We applaud all advocates for their continued engagement around the important MFP program. This week is crucial for advocates to continue educating Members of Congress on the positive impact this program has had on the lives of people with disabilities. It is AUCD's hope that MFP will be included in the March 23 omnibus appropriations package. Contact your senators and representatives to educate them on the importance of MFP in order to increase co-sponsors: 03/07: call. 03/08: social media. 03/09: email.

 
 

3/1/2018

Spread the Word to End the Word

Join us on March 7

The R-word hurts. It's offensive. It's derogatory. This worldwide campaign asks people to pledge to stop saying the R-word as a starting point toward creating more accepting attitudes and communities for all people. Language affects attitudes and attitudes affect actions. Pledge today to use respectful, people-first language.

 
 
 

About CORE

The AUCD Board of Directors has established a number of Councils and Committees that are made up of experts in the field to help the Board address emerging trends and issues, and to facilitate communication across and beyond the AUCD network.

The Council on Research and Evaluation encourages sound research and evaluation in the field of disabilities. It promotes collaborative research and evaluation endeavors among AUCD network members and across funding agencies and organizations, advocates for broad acceptance of the many valid research and evaluation methodologies utilized, supports the training of tomorrow's professionals to provide quality research and evaluation activities, advances the involvement of individuals with disabilities in all aspects of research and Council activities, and recognizes quality research and evaluation accomplishments.

 



The Council on Research and Evaluation (CORE) is AUCD's most recently formed Council (2006).

 

Mission
Research and evaluation involve methodologies which can assure the systemic change, advocacy, and capacity building for individuals with disabilities. In many ways, the AUCD network is the partner that can bring data to decisions which are made about programs and policies. The mission of the Council on Research and Evaluation is to encourage quality research and evaluation, promote collaborative studies across the AUCD network, advocate for broad acceptance of the many research and evaluation methodologies utilized across both the disciplines and the network Centers, support enhanced training to perform quality research and evaluation activities, advance the involvement of individuals with disabilities in all aspects of research, and to recognize quality research and evaluation across the AUCD network.

Purpose
The Council shall: serve as a focus for the identification and discussion of issues regarding research and evaluation; serve as a representative voice of the research and evaluation activities within the Association's network; and influence the development and implementation of initiatives relevant to achieving and sustaining appropriate research and evaluation activities to guide the development of national policies.

The Council fulfills its mission and purpose for AUCD and its constituent membership by serving as a conduit for technical assistance, providing input into policy, and engaging in other support activities deemed necessary to advance the mandate for research and evaluation.

For more information, contact Dan Zhang.

 

 
 

Upcoming Events of Interest to CORE Members

AUCD Leadership Academy  Copy to Calendar
Monday, June 25, 2018 - Saturday, June 30, 2018

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