Council on Research and Evaluation (CORE)

 

Purpose

Download this one page flyer about CORE to print or share.     

The CORE serves as a focus for the identification and discussion of issues regarding research and evaluation; serves as a representative voice of the research and evaluation activities within the AUCD Network; and influences the development and implementation of initiatives relevant to achieving and sustaining appropriate research and evaluation activities to guide the development of national policies.

 
 

How CORE Relates to AUCD and Its Work

The CORE fulfills its purpose and the mission of AUCD and its constituent membership by serving as a conduit for technical assistance, providing input into policy, and engaging in other support activities deemed necessary to advance the mandate for research and evaluation. The Council helps the association to:

  • Set and accomplish its research goals specified in the AUCD Strategic Map.
  • Carry out training activities to inform network members on important and emerging research and evaluation topics.
  • Develop the research capacity of each network member to conduct quality research and sound evaluation activities.
  • Identify topics of common interests to network members and develop recommendations to the AUCD Board.
  • Lead the Network in involving people with disabilities and their family members to participate in research and evaluation activities.

 
 

Membership

The Council on Research and Evaluation, known as CORE, is made up of individuals whose work is related to or who is interested in research and evaluation. CORE members are from each Center and program across the AUCD network. Membership is open to anyone in the AUCD network who chooses to join the CORE by selecting the CORE in their AUCD Directory. Each network member can also designate an individual representative who will cast one vote when a matter before the Council requires such an action. Members of the CORE are expected to attend the membership meeting during AUCD Annual Conferences and quarterly conference calls.

 
 

2018 Focus Areas

The 2018 CORE annual plan includes:

  • Involving individuals with disabilities as researchers in research teams by developing recommendations for working with university IRBs, by sponsoring a Driving Change session on this topic during the 2018 AUCD Conference, and by editing a book focusing on participatory research.
  • Providing training to Network members on how to evaluate the UCEDD core grants.
  • Develop recommendations to the Network on accessible methods of data visualization for people with disabilities.
 
 

CORE Leadership

Chair: Ronda Jenson, Ph.D.

Email: [email protected]

 
 

NEW on the CORE
Web Pages

 

5/7/2021

Association of University Centers on Disabilities (AUCD) Launches COVID-19 Vaccine Confidence Initiative to #VaccinateByADA

Just in time for Mother's Day, the Association of University Centers on Disabilities (AUCD) is launching a new public health initiative, COVID-19 Vaccine Access and Confidence for People with Disabilities, engaging 23-AUCD network centers strategically located across the country to reach local disability communities, reduce access barriers, and promote vaccine confidence. The goal is to vaccinate all eligible people with disabilities by the anniversary of the Americans with Disabilities Act (ADA) on July 26th.

 
 
Our PN Team, left to right, consists of Fran Goldfarb (Parent Specialist and Director of UCEDD Community Education), Helen Setaghiyan (Project Coordinator), Guadalupe Lorena Eaton (Parent Navigator), Lucia Babb (Parent Navigator), Dr. Christine Mirza

5/12/2021

Parent Navigator Team's COVID-19 Response at the USC UCEDD

The Parent Navigator (PN) Project provides three full-time Parent Navigators, who are parents of individuals with developmental disabilities themselves and have extensive experience in system navigation, to assist families with linkage to Early Intervention Services, the CA Regional Centers, and other appropriate community resources.

 
 

5/11/2021

New RTC Rural Research Brief: COVID-19 vaccination among disabled people

RTC:Rural's newest fact sheet explores how people with disabilities are experiencing COVID-19 vaccination efforts in the United States. Addressing this knowledge gap is critical to ensuring that people with disabilities are considered as vaccination efforts progress during the ongoing pandemic and future health crises.

 
 

5/7/2021

Request for Proposals: UCEDD Leadership Development

Deadline to submit a proposal: May 26, 2021.

The UCEDD Resource Center (URC) is seeking consultation to develop a UCEDD Network Leadership Development Map ("Map") and TA plan. The Map will provide UCEDD network members with concrete information about the knowledge, skills, and abilities that they need to advance their careers within the UCEDD network and about existing strategies, resources, and opportunities to acquire those knowledge, skills, and abilities. The TA plan will identify gaps in the UCEDD network career pathways and provide the URC with recommended activities to address those gaps. Both documents will specifically attend to the unique needs of the network and network members to enhance career opportunities for individuals from historically underrepresented communities.

 
 

5/6/2021

Arizona's UCEDDs Collaborate, Provide Support for National Events

Arizona's University Centers for Excellence in Developmental Disabilities (UCEDDs) helped support two virtual conferences, the 2021 African American Conference on Disabilities (AACD) and the 17th Annual American Indian Disability Summit.

 
 

5/6/2021

HDI to Partner with the Adaptive Martial Arts Association

The Kentucky Inclusive Health Collaborative at the UK Human Development Institute is excited to partner with the Adaptive Martial Arts Association (AMAA) to develop training modules for a web-based certificate course for instructors to increase capacity for adaptive martial arts in their academies.

 
 

5/6/2021

The University of Miami Mailman Center LEND Program Empowers the Next Generation of Physicians

The Mailman Center LEND program has teamed up with the medical school's NextGenMD program to develop a pathway in Child Health, Development, and Leadership. The Next GenMD curriculum pathway provides a longitudinal, structured learning opportunity for a non-dual degree medical student in the form of didactic sessions, required coursework, research under the direction of faculty mentors, experiential learning, professional development through participation in organizations, societies and scientific meetings, and self-directed learning activities, both conventional and web-based.

 
 

5/6/2021

UNH Contract Expands Treatment for Youth and Young Adults with Substance Use Disorders in NH

The NH Department of Health and Human Services Bureau of Children's Behavioral Health and Bureau of Drug and Alcohol Services recently awarded UNH's Institute on Disability (IOD) a $244k contract to expand the Creating Connections NH program, a behavioral health initiative that supports youth and young adults with substance use disorders.

 
 

5/6/2021

WebAIM Celebrates Anniversary by Offering Scholarships to People with Disabilities

WebAIM celebrated its 20th year by giving back. The WebAIM team, located in the Center for Persons with Disabilities at Utah State University, trains individuals and corporations on web and digital document accessibility. As part of their anniversary celebration, they are offering free enrollments to their accessible documents course to people with disabilities, many of whom work in the accessibility field.

 
 

5/3/2021

Pathway Program Adjusts to Remote Internships During Pandemic

Pathway at UCLA Extension has taken great pride in our robust internship program, which matches students with internship sites based on their career interests. For the last 15 years these internships have been in person. When Covid-19 restricted in-person internships for our safety in Los Angeles, Vocational Advisor, Rachael Ambler, started thinking outside the box. "Internships give our students a sense of purpose and responsibility, and even though in person opportunities were on hold, this need remained."

 
 

4/29/2021

AUCD2021 is Going Virtual - Submit Your Proposal Today!

AUCD has made the decision to conduct the 2021 Conference as a fully virtual event. With the theme of "Learning Together: Connecting Research and Lived Experience," AUCD2021 will continue to serve as a forum for meaningful collaborations around important topics, best practices, and issues that affect the disability community, our network, and beyond. AUCD is also excited to continue 50th anniversary celebrations during the virtual conference. The 2021 AUCD Conference will take place online November 15-17 and more details on exact times and other potential events will be shared going into the summer. Submit your proposal today!

 
 

4/29/2021

Updates from the State Public Health Autism Resource Center

2021 has arrived! Despite the challenges we have all faced during COVID-19, our Community of Learners have persevered and made excellent progress in their work. To learn more about each grantee's work, check out their state profiles on the SPHARC webpage.

 
 

4/28/2021

AIR-B Network Continues Outreach in Diverse Communities

Although much of the research activity has moved virtual, the Autism Intervention Research Network on Behavioral Health (AIR-B Network; PI: Kasari) continues its research-community partnership in the COVID-19 era. The AIR-B is a network of researchers at UCLA, UC Davis, University of Pennsylvania, University of Rochester, Drexel University, University of Kansas, University of Washington and each site's local community partners working to increase equity in access to ASD information and interventions for families of children with ASD.

 
 

4/28/2021

AIR-P (UCLA): Progress to Date

The Autism Intervention Research Network on Physical Health (AIR-P) is a multi-disciplinary, multi-site network that supports innovative life course intervention research and promotes optimal health and well-being of autistic individuals across the lifespan. In September 2020, the University of California, Los Angeles (UCLA) was awarded funding by the Maternal and Child Health Bureau in the Health Resources and Services Administration to lead and develop the network with the primary goal of increasing the life expectancy and quality of life for autistic individuals.

 
 

4/28/2021

Autism Friendly Initiative

Patients on the autism spectrum have various sensory and communication needs which can make the fast-paced and often over-stimulating hospital environment particularly challenging. In response, Boston Medical Center (BMC) launched the Autism Friendly Initiative in order to improve the healthcare experience for patients with autism spectrum disorder (ASD) and their families.

 
 

4/23/2021

National Covid-19 Resiliency Network Regional Community Coalition

The Regional Community Coalition (RCC) is a sub-committee of the National Community Coalition Board (NCCB) of the National Covid-19 Resiliency Network (NCRN). The RCC fosters collaboration and networking to create sustainability among Community Organization and Strategic Partners for future cross collaborative work and activities for the successful and immediate response, recovery, and residency reduction of COVID-19 among impacted populations.

 
 

4/21/2021

2021 Trainee Council Representatives Selected!

We are pleased to announce our 2021 Council Trainee Representatives.

 
 

4/21/2021

Governor Appoints Dr. Kiriko Takahashi to Hawai'i State Council on Developmental Disabilities

On March 31, 2021, the Hawaiʻi Senate voted to approve Governor David Ige's recommendation (GM581) to appoint Dr. Kiriko Takahashi to serve as a member of the Hawaiʻi State Council on Developmental Disabilities (DD Council).Effective immediately until June 20, 2022, she will join the 28 Governor appointed members that include individuals with intellectual and developmental disabilities, parents, family members and representatives from public and private agencies that serve this population.

 
 

4/19/2021

MN LEND Fellow Builds Communication and Trust Through Animals

As a 2019-20 fellow in the Minnesota Leadership Education in Neurodevelopmental and Related Disabilities (MNLEND) program, Carl Luepker spent time with Hold Your Horses, a Greenfield, Minnesota provider of occupational and physical therapy and mental health services using hippotherapy. The practice employs the gait and movement of horses to assist people with neurological and developmental disabilities or mental health issues.

 
 

4/19/2021

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Podcast Series Communicates Disabilities Research in Plain Language

"The Promise of Discovery" is a podcast hosted by the Vanderbilt Kennedy Center (VKC)(TN IDDRC, UCEDD, LEND) that highlights research in intellectual and developmental disabilities in plain language, making it accessible to the general public. The podcast launched in 2020, with new episodes each month

 
 

4/16/2021

AUCD Professional Fellows Alum Wins United Nations Award for Inclusive Education TV Show

AUCD Professional Fellows alumna Maria Omare from Nairobi, Kenya, has won a grant from the United Nations Development Programme (UNDP) for her work on Somesha Stories, a TV series she created that delivers accessible and inclusive educational content to children in East Africa. Somesha Stories is a weekly program that promotes early literacy and is one of the first children's TV series in East Africa to use closed captioning and sign language in all episodes. The series uses interactive storytelling to foster inclusive values and educate children about diverse topics, including science, community, mental health, COVID-19, and interacting with peers.

 
 

4/16/2021

Connecting Trainees on a State Level: California Maternal and Child Health Leadership Training Network

n article highlighting the California Maternal and Child Health Leadership Training Network (CAMCHLTN), a leadership project developed by the trainees of the California Leadership Education in Neurodevelopmental and Related Disabilities (CA-LEND) Training Program at USC University Center for Excellence in Developmental Disabilities, based at Children's Hospital Los Angeles and affiliated with the USC Keck School of Medicine

 
 

4/16/2021

Current and Former LEND Trainees Provide Unique EI Services Through the FOCUS Program

As the New Mexico LEND cohort liaison to the Emerging Leaders Community, I had the opportunity to interview Una Vicenti and Laura Hawkey of the FOCUS program. Vicenti is an Occupational Therapist and Director of Early Intervention Services and Laura works as a Family Service Coordinator and developmental specialist within the program. Hawkey is a current LEND trainee and Vicenti is a LEND fellow. Vicenti reported that 3 other employees at FOCUS, including the program director, are LEND fellows.

 
 

4/16/2021

Direct Support Workforce and COVID-19 National Report: Six-Month Follow-up

The Institute on Community Integration's Research and Training Center on Community Living for Persons with intellectual and Developmental Disabilities at the University of Minnesota, in partnership with the National Alliance for Direct Support Professionals, conducted a survey of approximately 9,000 direct support professionals (DSPs) from across the country about their experiences supporting people with intellectual and developmental disabilities (IDD) during the COVID-19 pandemic. This is a six-month follow-up report to the initial report completed in April 2020 and is the largest study conducted on the direct support workforce.

 
 

4/16/2021

Important Date Change - AUCD's Prepared4ALL Town halls rescheduled to the 3rd Wednesday of every month, 1pm ET

AUCD's Prepared4ALL townhalls are open to all of our existing Prepared4ALL Affiliates and Partners as well as any other individuals or organizations interested in inclusive emergency preparedness. These townhalls serve as a place to receive support from our center's team, learn about new resources, and collaboratively problem solve with others when making inroads with local emergency preparedness efforts. These meetings will now be held on the 3rd Wednesday of every month at 1pm ET.

 
 

4/15/2021

AUCD's Prepared4ALL Launches Online Training

The Prepared4ALL initiative, offered by AUCD's new Technical Assistance and Training Center, is excited to announce the launch of their online training, "Prepared4ALL: Whole Community Inclusive Emergency Planning". This free self-paced online training aims to help disability organizations increase their knowledge about emergency planning so they can begin or continue to get involved in these efforts in their local community while also building sustainable partnerships with their local emergency and public health professionals. This training is centered around the Prepared4ALL process, a strength-based model which helps organizations creatively and flexibly navigate inclusion and accessibility issues.

 

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