News / Document Search Results
3/25/2024
IDDRC Research Brief: Providing Support for Families Affected by Rare Genetic Diseases
The RFK IDDRC unveils its groundbreaking "Operation IDD Gene Team" program developed by Dr. Steven Walkley. This multidisciplinary initiative supports families affected by rare genetic diseases causing intellectual & developmental disability (IDD).Operation IDD Gene Team brings together families, physicians, and scientists to foster understanding and empowerment. Through collaborative meetings, families share their experiences, physicians discuss clinical implications, and scientists provide insights into gene biology. Published in the Journal of Neurodevelopmental Disorders, this innovative program offers hope and guidance to families while advancing research into rare genetic diseases.
3/18/2024
AUCD Joins University of Kansas as Co-Host for Gatlinburg Conference on Intellectual and Developmental Disabilities
The Gatlinburg Conference, a premier research event focused on Intellectual and Developmental Disabilities (IDD) in its 56th year, is proud to announce that the Association of University Centers on Disabilities (AUCD) will be joining the University of Kansas as co-host for this year's conference. The event is scheduled to take place from April 17th to 19th in Kansas City, MO, with the theme "Early Life Identification of Intellectual and Developmental Disabilities."
2/1/2024
Medical and Dental Curricula on IDD: Training Inclusive Providers
A Study on How Medical and Dental Schools Teach Students about IDD
Past research has shown that many medical and dental students do not learn about IDD in school. The WITH Foundation, AUCD, and UC-LEND, led by Dr. Kashia Rosenau, collaborated to learn more about how medical and dental schools are teaching students about intellectual and developmental disabilities (IDD). The study found that most of the schools had self-advocates to help them teach their medical and dental students about caring for patients with IDD. The study also found that medical and dental students want to learn more about caring for their patients with disabilities. Overall, the study highlights the importance of teaching medical and dental students about caring for patients with IDD and including more self-advocates in this training.
1/30/2024
Michigan Developmental Disabilities Institute and Michigan Vaccination Partners accomplishments Highlighted in APHA's Thought Leadership Film Series
The American Public Health Association (APHA) selected the Michigan Developmental Disabilities Institute (MI-DDI) at Wayne State University and the Michigan Vaccination Partners project to be featured in the APHA 2023 Thought Leadership Film Series. The series profiles cutting-edge efforts to address public health issues being led by researchers, advocates and organizations across the country.
1/26/2024
Apply Today: AUCD Leadership Academy
The deadline to apply is March 1st at 5:00 PM EST
The AUCD Leadership Academy is a week-long intensive experience, paired with a year of pre and post interactions designed to enhance the skills of current and emerging leaders from disability networks to build coalitions to improve systems of supports and services. The Leadership Academy engages participants from UCEDDs, LENDs, and the wider community of disability partners to come together to immerse themselves for a week of study, shared experiences, self-evaluation, and skill development.
1/23/2024
A National Partnership to Advance Peer-Support Models for People Who Need Augmentative and Alternative Communication (AAC)
The Association of University Centers on Disabilities (AUCD) is pleased to announce that the University Center of Excellence in Development Disabilities Education, Research, and Service (UCEDD) at Oregon Health & Science University (OHSU), in partnership with CommunicationFIRST, has been selected as the recipient of a subaward to create a national partnership to develop an approach and plan to advance peer-support models for augmentative and alternative communication (AAC) users.
1/18/2024
ICI, UM Extension Partner For 4-H Youth
The MN UCEDD has created accommodation kits containing tools to better accommodate Minnesota 4-H members with and without disabilities. The training also shared tips about more fully including youth with disabilities.
1/17/2024
Student Spotlight - Blake Jackson
Meet Blake Jackson, a resilient second-year student in the Direct Support Professional - General (DSP-G) track. As a proud member of the PATHS class 2024 in the fightin' Texas Aggie community, Blake is enrolled in the Postsecondary Access and Training in Human Services (PATHS) Program, where he finds inspiration in Andrey Hepburn's timeless words: "Nothing is impossible, the Word itself says "I'm possible'!".
1/16/2024
Missouri's UCEDD Develops "After Abuse: Resources for Missourians with Disabilities"
The University of Missouri-Kansas City's Institute for Human Development, the University Center for Excellence in Developmental Disabilities for the state of Missouri, in cooperation with the Missouri Developmental Disabilities Council, has published a new online resource called After Abuse: Resources for Missourians with Disabilities to help people with disabilities learn about abuse and what happens when it is reported.
1/10/2024
University of Massachusetts Boston Institute for Community Inclusion Partners with the International Disability Alliance and the African Disability Forum on International Fellowship Program
The Institute for Community Inclusion (ICI) at the University of Massachusetts (UMass) Boston, in collaboration with the International Disability Alliance (IDA) and the African Disability Forum (ADF), has been awarded a grant from the US Department of State to launch the third round (FY 2023) of the Professional Fellows Program on Inclusive Civic Engagement. This program, designed for emerging leaders in East Africa, aims to facilitate exchange and implementation of best practices for disability-inclusive civic engagement.
1/9/2024
Researchers Find Possible Neuromarker for 'Juvenile-onset' Batten Disease
New research from the University of Rochester Medical Center, an AUCD IDDRC Network site, suggests an easy-to-measure brain process may be a target or biomarker in measuring treatment outcomes in clinical trials for patients with Batten disease.
11/2/2023
UCEDD Resource Center ExceLens Series: AUCD Emerging Leader: Blake Warner
Honoring the theme of the AUCD Annual Conference, this edition of ExceLens is excited to feature AUCD Emerging Leader Blake Warner. Blake has previously completed two years of SD LEND and is currently serving as a UCEDD trainee and completing a predoctoral internship at the UCLA Tarjan Center. Blake is passionate about advocacy and policy reform efforts, particularly for LGBTQ+ individuals in the disability community. The AUCD Community Inclusion Team was able to sit down with Blake and learn more about his interests, goals, and experience so far as an AUCD Emerging Leader. Please read on to see the highlights from Blake's interview!
10/26/2023
Announcing the 2023-2024 Emerging Leaders Community Interns
The Emerging Leaders Community is excited to announce 3 Interns for the 2023-2024 training year! These trainees will serve as visible ambassadors to the broader AUCD network, interacting with AUCD staff at all levels and the AUCD Board of Directors' Emerging Leaders Representative.
10/24/2023
AUCD Partners with USAging
AUCD is thrilled to be a partner with USAging for the Aging and Disability Vaccination Collaborative, thanks to vital funding from the Administration for Community Living. AUCD's selected Network Centers and Programs are providing needed flu and COVID-19 shots to people with disabilities and older adults to help keep them healthy.
10/4/2023
Call for Comments: New 504 Regulations
AUCD is collecting comments from our network on the Notice of Proposed Rulemaking (NPRM) from the U.S. Department of Health and Human Services (HHS) regarding the proposed regulations for Section 504 of the Rehabilitation Act. The proposed rule, "Nondiscrimination on the Basis of Disability in Health and Human Services Programs and Activities", will strengthen protections, advance equity, and bolster protections for people with disabilities while participating in any service or activity that receives funding from HHS.
9/29/2023
The Wyoming Institute for Disabilities Wins 2023 ECHO Excellence Award
Nationwide, just over 19 percent of the Department of Education's accredited institutions have taken advantage of a digital documents course developed at the Institute for Disability Research, Policy & Practice. Faculty and staff from all the universities in the Utah System of Higher Education have taken the course, which helps them provide accessible digital materials to their students.