Early Childhood SIG

 

The Early Childhood Special Interest Group at AUCD provides information to Network members on critical issues related to early childhood.  The EC SIG Co-Chairs are Mary Beth Bruder and Corry Robinson.

 
 

Events

The Current State of Service Coordination Across the Country

The Current State of Service Coordination Across the Country  Copy to Calendar

Tuesday, December 17, 2019
3:00 p.m. - 4:00 p.m. ET
Location: Webinar

The national status of service coordination under Part C of IDEA for infants and toddlers with disabilities and their families will be described using data from surveys and case studies. The presenters will describe three data sets collected to measure aspects of service coordination, and discuss the challenges facing service coordinators and families as reported in the data.

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News and Resources

 

11/25/2019

Brown DBP Team at SDBP 2019 (RI UCEDD/LEND)

Faculty and trainees from the department of Developmental and Behavioral Pediatrics (DBP) at Hasbro Children's Hospital attended the annual meeting of the Society of Developmental and Behavioral Pediatrics (SDBP) held in Washington DC from September 16th to 19th.

 
 

11/4/2019

Minnesota LEND Fellows Partner with Community Organization to Promote Mindfulness

Families of children with autism spectrum disorder (ASD) often report chronic and high levels of stress. A group of MNLEND Fellows are partnering with a local nonprofit organization, Communities Engaging Autism (CEA), to support families as they face the challenges of raising children with ASD and other neurodevelopmental disabilities (NDD).

 
 

10/15/2019

Mailman Center Implements Early Start Denver Model (FL UCEDD/LEND)

Therapists at the University of Miami Mailman Center for Child Development (MCCD) have embarked on an ambitious project to bring Early Start Denver Model (ESDM) services in English and Spanish to Miami. ESDM is an evidence-based intervention specifically developed for very young children with autism that fuses behavioral and developmental principles for an integrated approach. ESDM can be implemented in a clinic as well as different natural settings such as the home or the daycare/preschool by trained therapists and by parents within play and daily routines.

 
 

9/26/2019

Act Early Network News, Fall 2019

 
 
Picture of NCDPH's poster presentation with Sara Lyons from NACCHO, at NACCHO's annual conference in July 2019 in Orlando, FL

8/26/2019

AUCD's National Center on Disability in Public Health Working for You

AUCD's National Center on Disability in Public Health (NCDPH) builds capacity by encouraging collaboration between public health partners and AUCD's Network Centers. Key areas of health disparity serve as the focus areas for this National Center and include: Access to Healthcare, Developmental Monitoring and Screening, Emergency Preparedness, Nutrition and Healthy Weight, Wellness and Mental Health, and Sexual and Reproductive Health.

 
 

8/19/2019

Mailman Center for Child Development LEND Trainee Awarded JCCAP Launch Award (FL UCEDD/LEND)

Pediatric psychology intern Nicole Lorenzo, second left in picture, was awarded the Journal of Clinical Child and Adolescent Psychology (JCCAP) Launch Award. She received this recognition during the JCCAP Future Directions Forum on June 28-29 in Washington, DC.

 
 

6/25/2019

Board President Amy Hewitt Testifies at the Reauthorizing Autism CARES Act of 2019 Hearing

Amy Hewitt, AUCD Board President and Director of the Institute on Community Integration, University of Minnesota, gave a powerful testimony on the importance of reauthorizing Autism CARES at the Energy and Commerce Committee Hearing on Tuesday, June 25, 2019.

 
 

6/25/2019

Dedication, Hard Work, and Achievement: Honoring John B. Moeschler, MD, MS (NH ME LEND)

John B. Moeschler, MD, MS. is retiring from his role as Program Director for the New Hampshire-Maine Leadership Education in Neurodevelopmental Disabilities Program after 27 years of service from 1992-2019. As a developmental behavioral pediatrician and geneticist in NH, he served thousands of children and families with, or at risk for, intellectual and developmental disabilities (IDD) and trained hundreds of interprofessional leaders in high quality, innovative clinical care. In recognition of his many accomplishments, John was awarded Pediatrician of the Year by the NH Pediatric Society in 2012.

 
 

6/24/2019

Act Early Network News, Summer 2019

 
 

6/6/2019

Maryland Center for Developmental Disabilities (MCDD) Professional Development Training in a Rural Region

In partnership with The Children's League and the Judy Center, the Maryland Center for Developmental Disabilities at Kennedy Krieger Institute conducted a two-day ACT Raising Safe Kids training for professionals at the Allegany College of Maryland in Cumberland, Maryland on May 14-15, 2019. ACT Raising Safe Kids is a program developed by the American Psychological Association violence prevention office.

 
 

5/28/2019

54 Learn the Signs.Act Early. Ambassadors Complete Annual Training at NCBDDD/CDC

42 new Learn the Signs. Act Early. Ambassadors joined forces with a veteran cohort of 12 Ambassadors representing 48 states, 3 territories and the District of Columbia on the campus of the Centers for Disease Control and Prevention (CDC) for the Annual Act Early Ambassador Training April 30-May 1, 2019 hosted by the Learn the Signs. Act Early.

 
 
LEND Audiology trainees and faculty discuss the role of audiologists in supporting families to accessing timely diagnostic services.

5/20/2019

LEND Audiology Trainees Learn Strategies for Early Diagnosis at EHDI 2019

The 18th annual Early Hearing Detection and Intervention (EHDI) Meeting welcomed nearly 1,000 diverse stakeholders on March 4-6 in Chicago, IL. The EHDI Meeting brings together those who work in state-based EHDI Programs, assist in EHDI efforts on the federal level, provide screening, diagnostic, and early intervention support at the state level to young children who are deaf and hard of hearing and their families, and deaf and family advocates. The Meeting is organized by the American Academy of Pediatrics, Hands and Voices, U.S. Department of Health and Human Services: Health Resources and Services Administration, and National Center for Hearing Assessment & Management at Utah State University.

 
 

5/7/2019

Tuesdays with Liz: Stephanie Meredith on Prenatal Testing and Disability

For our Mother's Day special, Liz talks with Stephanie Meredith, the Lettercase Program Director at the University of Kentucky's UCEDD, about prenatal testing. Stephanie shares how doctors should communicate with expectant parents if testing determines that their child has a disability.

 
 

4/22/2019

Linking Nutrition and Disability (MN LEND)

What does food have to do with disability? Kalia Thor wanted to know. She is a Fellow in ICI's Minnesota Leadership Education in Neurodevelopmental and Related Disabilities (MNLEND) Program, but she is also a second-year Master of Public Health nutrition student at the University of Minnesota, a Maternal and Child Health nutrition trainee, and a nutrition educator for the Women, Infants, and Children (WIC) program. "During undergrad [in nutritional science], I always wondered why nutrition choices were so limited for certain individuals with disabilities and why they tended to be so 'picky' at mealtime," she says.

 
 

4/17/2019

AIR-B Network Hosts Community Autism Conference in South Los Angeles

The Autism Intervention Research Network on Behavioral Health (AIR-B Network; PI: Connie Kasari), consisting of University of California, Los Angeles, University of California, Davis, University of Pennsylvania, University of Rochester, Drexel University, and each site�s community partners, provides a free conference at each region�s community every year. The purpose of these conferences, an integral part of the AIR-B Network�s research, is to raise autism awareness, disseminate research findings in the community, and to bring researchers, parents and community members together.

 
 

4/17/2019

AIR-P Network Activities - April 2019

The Autism Intervention Research Network on Physical Health (AIR-P), led by Karen Kuhlthau, PhD, conducts research on evidence-based interventions to improve the physical health and well-being of children and adolescents with autism spectrum disorders (ASD) and other developmental disabilities, with an emphasis on reaching underserved communities.

 
 

4/17/2019

Caregiver Voices: Cross-Cultural Input on Improving Access to Autism Services

This study used qualitative methods to gather family and provider perspectives of perceived barriers and facilitators to obtaining an ASD diagnosis and accessing ASD-related services for underserved families. Themes from focus groups and interviews with families from three cultural groups (black, Hispanic/Latino, and Korean) and three primary languages (English, Korean, and Spanish) highlight specific barriers related to family, community, and systemic challenges as well as facilitators to accessing care for these populations.

 
 

4/17/2019

Early Identification of Developmental Concerns in Young Children

In recognition of Developmental Disabilities Awareness Month in March, CDC's Act Early Ambassador to New Jersey, Deepa Srinivasavaradan's article entitled, "Early Identification of Developmental Concerns in Young Children," highlighting the importance of ongoing developmental monitoring and screening using "Learn the Signs. Act Early." materials, was published in the March edition of Exceptional Parents Magazine. It included tips for doctors/professionals and next steps for parents to follow if developmental concerns are noted in young children.

 
 

4/17/2019

From Research to Practice - Wisconsin LEND: Milwaukee Link trainees engage in data analysis to develop the Family-centered Autism Navigation (Family CAN) Interview

The Wisconsin LEND: Milwaukee Link program is a satellite program of the Madison-based LEND program that is offered at the University of Wisconsin-Milwaukee. As an extension of the Wisconsin LEND program, Milwaukee Link trainees have the opportunity to engage in leadership training focused on enhancement of service delivery for children with autism spectrum disorder (ASD) and other developmental disabilities with ethnic and/or economic diversity. Research experiences are an integral part of a trainee's leadership development.

 
 

4/17/2019

MCHB Minute - April 2019

This issue of the Developments newsletter provides an opportunity to highlight a host of exciting activities coming up this spring and summer supported through the Autism CARES Act. HRSA's Autism staff is looking forward to the ongoing exchange of ideas and information that these activities will stimulate, and to interacting with you in many of these venues.

 
 

4/17/2019

Report: Low-Income and Minority Youth with Autism Face Worse Outcomes than Peers

Youth with autism are growing up in a world where awareness of autism and expectations for full inclusion in society are increasing. Today, one in 59 children have an autism spectrum disorder (ASD) according to the Centers for Disease Control and Prevention. Because autism spectrum disorder is a lifelong neurodevelopmental disorder and no two youth with ASD are alike, their service and support needs vary and continually change as they age.

 
 

4/17/2019

When an Early Diagnosis of Autism Spectrum Disorder Resolves, What Remains?

A chart review was performed of 38 children diagnosed with autism spectrum disorder (ASD) by 3 years of age at an inner-city developmental program who subsequently experienced resolution of ASD symptomatology and no longer met diagnostic criteria for ASD at follow-up an average of 4 years later. Demographic, developmental/cognitive data, Childhood Autism Rating Scale, and Autism Diagnostic Observation Schedule data as available were reviewed from the initial diagnostic evaluation and at the time of follow-up.

 
 

4/15/2019

Rural Institute Offers Education and Support to Advocates (MT UCEDD)

The Rural Institute for Inclusive Communities aims to educate policy makers about how their decisions impact children and adults with disabilities. One way to do so is to provide leadership education and support to local advocates like Jackie Mohler of Family Outreach in Helena, Montana. Jackie recently represented Montana at the AUCD Leadership Academy.

 
 

4/5/2019

Developmental Milestone Video Broadcast in Rural Health Clinics (NV UCEDD/LEND)

The Rural Institute for Inclusive Communities has partnered with the Nevada Center for Excellence in Disabilities, Nevada LEND program and Good Health TV to share a developmental milestone video with parents and families.

 
 

3/8/2019

2019-2021 Learn the Signs. Act Early. Ambassador Cohort Selected

The 2019-2021 Act Early Ambassador cohort has been recently selected and will begin their term at the annual Act Early Ambassador Training at CDC Headquarters in Atlanta on April 30th and May 1st, 2019. These Ambassadors will join Act Early Ambassadors representing the 12 states currently in the middle of their 2018-2021 term in their role as liaisons to the Act Early Initiative.

 
 

3/4/2019

Helping Babies Beyond Their First Year: A Day of Learning (WI LEND)

In Milwaukee, WI, 100 infants die before reaching their first birthday. Infant mortality disproportionately affects more Black infants than White infants in Milwaukee due to a variety of social, medical, and other complex factors. The Strong Baby Sanctuary is a network of faith-based organizations that are addressing this multifaceted issue by engaging the community in education, healthcare, and wellness.

 
 

2/25/2019

New Early Intervention Training Program (Georgetown UCEDD)

The Georgetown UCEDD has added a new partnership and program to their interdisciplinary pre-service preparation and training activities called GEORGE (Graduate Education of Related Service Providers at Georgetown and George Washington Universities in Early Intervention). With support from a grant from the U.S. Department of Education, Dr. Toby Long along with faculty from the GUCEDD, George Washington and Catholic Universities, has incorporated interdisciplinary pre-service program students into our existing Georgetown University Graduate Certificate in Early Intervention (GUCEI) Program.

 
 

1/29/2019

Public Health Surveillance of Prenatal Opioid Exposure in Mothers and Infants

The US opioid crisis is the public health emergency of our time and requires urgent public health action to monitor and protect the most vulnerable Americans. We have witnessed a startling death toll in 2017 with 70 237 drug overdose deaths in the United States, of which two-thirds involved opioids. The devastating consequences of this epidemic for mothers and infants have received less attention. Increases in opioid use and misuse in pregnancy have paralleled the increases in the general population; at delivery hospitalization, there were 4 times as many women with an opioid use disorder in 2014 compared with 1999. One of the most immediate and visible impacts of the opioid crisis on infants is the drug withdrawal in the newborn period, termed neonatal abstinence syndrome (NAS). On the basis of 2014 data, 1 newborn was diagnosed with NAS every 15 minutes in the United States, totaling about 32 000 infants annually with associated hospital costs estimated at $563 million.

pdf File PrenatalOpioidExposure.pdf [download]
 
 

1/29/2019

Public Health Surveillance of Prenatal Opioid Exposure in Mothers and Infants

The US opioid crisis is the public health emergency of our time and requires urgent public health action to monitor and protect the most vulnerable Americans. We have witnessed a startling death toll in 2017 with 70 237 drug overdose deaths in the United States, of which two-thirds involved opioids. The devastating consequences of this epidemic for mothers and infants have received less attention. Increases in opioid use and misuse in pregnancy have paralleled the increases in the general population; at delivery hospitalization, there were 4 times as many women with an opioid use disorder in 2014 compared with 1999. One of the most immediate and visible impacts of the opioid crisis on infants is the drug withdrawal in the newborn period, termed neonatal abstinence syndrome (NAS). On the basis of 2014 data, 1 newborn was diagnosed with NAS every 15 minutes in the United States, totaling about 32 000 infants annually with associated hospital costs estimated at $563 million.

pdf File PrenatalOpioidExposure.pdf [download]
 
 

1/2/2019

Fact Sheets Created From Disabled Parenting Project (OH UCEDD/LEND)

These fact sheets were created as part of our Cincinnati LEND Seminars in Evidence-Based Medicine project. A team of LEND trainees and faculty members conducted research on best practices while also consulting with stakeholders, including women with disabilities who have experienced pregnancy and prenatal care as well as medical providers.

 
 
 

Past Events

 HDI Community Training Event: Emerging Disabilities

HDI Community Training Event: Emerging Disabilities  Copy to Calendar

Friday, November 1, 2019
1:00 p.m. - 3:00 p.m. ET
Location: Video Conference

Disability is an abstract concept, and the landscape is changing, both in terms of disabilities and in societal response to emerging disabilities. This has implications across systems, including early childhood, education, workforce, health care and aging. Kathy Sheppard-Jones, Andy Imparato, and Phil Rumrill will provide an overview of several emerging disabilities (e.g. autoimmune disorders, mental health, opioid use disorders) and will also explore the notion of emerging disabilities from a state and national workforce context.

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Newborn Screening for Fragile X Syndrome and Other Developmental Disabilities

Newborn Screening for Fragile X Syndrome and Other Developmental Disabilities  Copy to Calendar

Tuesday, October 22, 2019
3:00 p.m. - 4:00 p.m. ET
Location: Webinar

Most professional believe that early intervention (EI) is essential to improving outcomes for children with intellectual and developmental disabilities (IDD) and their families. But how early is "early?" Should screening identify newborns with IDD, even before symptoms appear? Is there value in "pre-symptomatic" EI for children or families? Are pre-symptomatic treatments powerful enough to alter developmental trajectories in meaningful ways? Using fragile X syndrome to exemplify these issues, this presentation describes Early Check, a research program in which screening newborns for several disorders is offered to 120,000 families per year.

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Division for Early Childhood's  35th Annual International Conference on Young Children with Special Needs and Their Families

Division for Early Childhood's 35th Annual International Conference on Young Children with Special Needs and Their Families  Copy to Calendar

Tuesday, October 1, 2019 - Friday, October 4, 2019
Location: Dallas, TX

This year's conference, Dreaming of a Bigger Tomorrow: Building Our Future Through Collaboration and Partnerships, features foremost authorities in Early Intervention, Early Childhood Special Education, and the related disciplines. We look forward to having you join us for four days of programming, three keynote sessions, hundreds of conference and poster sessions, daily opportunities to network and more, this October in Dallas, Texas.

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NEW EI/ECSE Standards- Why? When? Next Steps

NEW EI/ECSE Standards- Why? When? Next Steps  Copy to Calendar

Tuesday, September 24, 2019
3:00 p.m. - 4:00 p.m. ET
Location: Webinar

The Division for Early Childhood of the Council for Exceptional Children is in the process of developing the first ever, stand alone, Early Intervention/Early Childhood Special Education Personnel Preparation Standards. Learn more about the standards,what led to this important step forward for the EI/ECSE workforce and what it means to the Early Childhood Field/Systems. We will share opportunities to provide feedback to the DEC Standards Development Task Force.

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EC efforts are funded by the Administration on Intellectual and Developmental Disabilities through technical assistance contract #Contract #HHSP23320110016YC. The contents of this page do not necessarily reflect the views or policies of the Administration on Intellectual and Developmental Disabilities, Administration for Community Living, US Department of Health and Human Services, or the US Government.