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New Tool from Community Catalyst to Assess and Improve Medicaid Managed Long-Term Services and Supports

A new tool from Community Catalyst can help advocates promote more consumer-focused Medicaid managed long-term services and supports by making it easier to identify weaknesses and promote better practices.



AUCD Issue Brief on Final FY14 Appropriations

President Obama signed the omnibus appropriations bill to fund the remainder of fiscal year 2014. AUCD has prepared this issue brief on the funding for programs important to the AUCD Network and people with disabilities.

pdf File FY14 Final Appropriations.pdf [download]


Primer for Civilian Nonprofit Organizations in Providing Support to our Military Families

This resource aims to help civilian nonprofit organizations understand the challenges faced by service members and their families, the support available through the military community, how to link military families to existing resources, and how organizations can best support military families.



Fact Sheet: The Lifespan Respite Care Program

From the Administration on Aging

This fact sheet provides background and information on the Lifespan Respite Care Programs, as authorized by the Lifespan Respite Care Act.



Lifespan Respite Task Force Appropriations Alert

The Lifespan Respite Care Program provides competitive grants to state agencies working in concert with Aging and Disability Resource Centers and non-profit state respite coalitions or organizations to make quality respite available and accessible to family caregivers regardless of age or disability through the establishment of State Lifespan Respite Systems. This alert gives the history of Lifespan Respite funding asks for further support for this program.

pdf File Lifespan Respite Approps Alert.pdf [download]


2011 Wingspread Conference Final Report: Building a National Agenda for Supporting Families with a Member with Intellectual and Developmental Disabilities

A group of diverse national and state family support leaders and stakeholders met during a three-day intensive conference held on March 6-8, 2011 at the Johnson Foundation's Wingspread Conference Center in Racine, Wisconsin. The purpose of the conference was to generate recommendations for a National Agenda on Family Support for families of people with intellectual and developmental disabilities (I/DD).



Building a National Agenda for Supporting Families with an Individual with Developmental or Intellectual Disabilities

The report includes as summary of the 2011 Wingspread proceedings as well as concrete recommendations to address the wide range of needs of families. The authors encourage the use of this report to further discussions and action planning, energize grassroots participation, and to encourage collaboration around specific action steps at the local, state and national levels needed to support families.



FCA's Family Caregiving Year in Review Report

The Family Caregiving Alliance and the National Center on Caregiving advances the development of high-quality, cost-effective policies and programs for caregivers in every state in the country. Recently, FCA released their "Family Caregiving 2011: Year in Review" report; a compilation of research, programs, legislation, and media coverage, that includes a section on managed long-term services and supports.



2011 Respite and Caregiving Fact Sheet

pdf File 2011 Respite and Caregiving Fact Sheet.pdf [download]


Fact Sheet 57: Respite for Adults with Mental Health Disorders

This fact sheet focuses on respite for family caregivers of individuals with mental health issues who are between the ages of 18 and 60. It is meant to assist state agencies, Lifespan Respite grantees and their collaborators, and respite providers by increasing their understanding of the unique needs of this population and their family caregivers.



National Respite Guidelines, 2011

The guidelines provide a summary of guiding principles addressing quality indicators for all respite models and services. They can act as a checklist for providers of respite to review as they address respite service delivery issues. The guidelines are intended to be used by respite provider programs, individual providers, health care providers, human services agencies (i.e., disability, health, aging, and children), state agencies, planning groups, stakeholders, and others who are interested in advancing quality respite.



Participant-Directed Respite Guidebook

This guidebook is offered as a resource for programs, including State Lifespan Respite Programs, that provide respite and are interested in developing and implementing participant-directed respite.



Statement on Caregiving Issues

This is a statement from the National Respite Coalition to Senate staff on the Lifespan Respite Care Program and how it makes a difference in the lives of caregivers.

pdf File Statement for staff September 2011 [download]


Benefits and Cost-Savings Due to Respite

A fact sheet prepared by the National Respite Coalition, Updated August 2011.

pdf File Benefits and Cost-Savings Due to Respite.pdf [download]


Release of Data from the 2007 Survey of Adult Transition and Health



Lifespan Respite Care Act Summary

Summary of the Senate Lifespan Respite Care Act of 2006

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