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KU and UNC Collaborate on Propel Project
.png "KU and UNC Collaborate on Propel Project") More and more students with intellectual and developmental disabilities are going to college, thanks to legislation like the Individuals with Disabilities ACT of 1975 and the 2008 Higher Education Opportunity Act, which authorized the creation of comprehensive transition and postsecondary programs, and made financial aid available. The Show-Me College website is being developed to provide information and resources about college-going opportunities in Missouri for students, families, educators and counselors. Read more...
Georgetown UCEDD Creates COVID-19 Video Series Featuring Family Physician
 What is COVID-19? Why does everyone need a vaccine? Why do the recommendations about COVID-19 keep changing? What is all the talk about needing a booster shot? Who better to answer these questions than a doctor who works with many members of the disability community in the District of Columbia (DC), and who has provided care for many years to the disability community. Dr. Kim Bullock is a family physician, who starred in a series of videos answering these questions about the virus and the vaccine. Read more...
Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Produces Trio of Videos on the COVID-19 Vaccine and Individuals with Intellectual Disability
The Vanderbilt Kennedy Center of Excellence in Developmental Disabilities (TN IDDRC, UCEDD, LEND) has produced three brief videos to build COVID-19 vaccine confidence in the disability community. These videos feature an adult with an intellectual disability and a parent and her daughter with autism, who share their personal experiences, hesitancy, and decision-making related to getting themselves or their child vaccinated. Read more...
University of Miami Miller School of Medicine Launches Innovation Transition Care Clinic for Individuals with Disabilities
Transition from pediatric health care to adult-oriented health care can be especially complicated for people with disabilities and/or chronic health conditions. To make this transition easier, the Mailman Center for Child Development in the Department of Pediatrics, in collaboration with the Department of Internal Medicine at the University of Miami Miller School of Medicine, recently launched the Progression Across Transition in Healthcare (PATH) program. Read more...
It's Up to You: Reach Out to DSPs
Funded by AUCD, the MN UCEDD, in partnership with the National Alliance for Direct Support Professionals, has produced a series of short public service announcements (PSAs) of direct support professionals encouraging their colleagues to get vaccinated against COVID-19, an urgent need. Read more...
Supporting Families Summit: Celebrating 10 Years
Nearly 53 million people in the U.S. today provide support for a family member with a disability or someone aging. As caregivers to those with a disability, or who are aging, family members have complex support roles that extend beyond activities of daily living assistance. They often include financial, medical, and technical supports and coordination across all systems of support. Read more...
Listen to Possibilities Episode 2 on Medication Management
 Sixty-one million adults in America live with a disability as of 2020, according to the Centers for Disease Control and Prevention. Disabilities come in many forms and are essentially any condition, mentally or physically, affecting one’s ability to complete certain activities. According to a 2019 American Community Survey posted by the U.S. Census Bureau, 6% of children in Louisiana have a disability. Read more...
Mailman Center Launches Prevention Research Program for Children with Special Health Care Needs
A research program led by the Mailman Center for Child Development at the University of Miami Miller School of Medicine received funding of $900,000 from the Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau. The study “Health Equity at the Intersection of Disability and Ethnic Group Status: Adaptation of ‘Healthy Caregivers-Healthy Children’ for Children with Special Healthcare Needs (HC3)” will implement and evaluate the effectiveness of an obesity prevention program for children with developmental, physical, and/or intellectual disabilities. Read more...
Updates from the CU Pediatric PT Residency Program
The University of Colorado Pediatric Residency is a post-professional physical therapy residency program of the University of Colorado Physical Therapy Program in the School of Medicine and JFK Partners. The residency was established in 2011 under the Founding Director, Mary Jane K. Rapport, PT, DPT, PhD, FAPTA, and it received initial accreditation in 2012. Mary Jane has also served as PT Discipline Director for over 20 years. At the end of January, Mary Jane will retire from the University of Colorado, and several months later she will be joining the faculty of the first DPT Program in Hawai’i opening at Hawai’i Pacific University. Read more...
Wisconsin UCEDD SaferKids Program
Benji is a bright-eyed and energetic six-year-old. He and his two brothers keep their mom, , constantly on her toes. But Benji, who was recently diagnosed with autism, was exhibiting some behaviors that were leaving his mother fearful for his safety. While at the Waisman Center Benji’s mother mentioned her concerns to one of the clinic’s family navigators. That’s when she was told about the Waisman Center’s SafterKids program. Read more...
COVID-19 Vaccines for Children with Developmental Disabilities: Parent Survey of Willingness and Concerns
Compared to the general pediatric population, parents of nearly 400 children with a DD were more willing for them to receive COVID-19 vaccines. In this new pre-print by the RFK UCEDD (Bronx, NY) and SCDD UCEDD (Rochester, NY), parents of 75%, 49%, and 38% of children aged 12-17, 6-11 and 0-5 years-old, respectively, had gotten or would get their child vaccinated ASAP. (the study was fielded when vaccines were authorized for children aged 12+ years.) Read more...
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