Resources

The purpose of A Roadmap for Advancing Family-Engaged Developmental Monitoring is to introduce and describe family-engaged developmental monitoring (FEDM) as a key component of a framework for children's healthy development and family wellbeing that includes developmental promotion, FEDM, screening, referral, and receipt of services.

While the COVID-19 pandemic has impacted how individuals worldwide live, work, communicate, and receive medical care and education, it has further illustrated the disproportionate gaps that exist for people with disabilities to receive these same resources and services necessary for survival and quality of life. The Association of University Centers on Disabilities (AUCD) has identified, responded to, advocated for, and addressed the needs of people with disabilities throughout the pandemic.

A wide range of UCEDDs have engaged in the implementation of the ABLE Act at the national, state, and local levels. UCEDDs are both developing new initiatives and resources specific to the ABLE Act and incorporating content on the ABLE Act into existing programs and projects.

Geared for individuals with disabilities, this paper was produced by members of the Association of University Centers on Disabilities (AUCD) because they want to help people work together to support the self-determined transition of youth to adulthood and community life.

The Research to Practice in Self-Determination Series describes key issues in the field of developmental disabilities that can be enhanced by considering efforts to promote self-determination. Seven issues will be produced, each focusing on a specific topic: self-advocacy, health, employment, community services, aging, family support, and siblings.

In collaboration with the Developmental Disabilities network, self-advocates, and allies, a series of nine regional summits across the country were held in 2011-2012 to promote collaboration, planning, and recommendations at the state and national levels. This report summarizes the goals of the Self-Advocacy Summit Initiative and describes the planning, implementation, findings, outcomes, evaluation, and feedback of the events.

This report provides information about the availability of services and support for individuals with developmental disabilities (DD) and their families, the needs of DD tribal members and their families, and tribal members' familiarity and contact with the DD Network agencies.

In collaboration with the Developmental Disabilities network, self-advocates, and allies, a series of five regional summits across the country were held in the spring of 2011 to promote collaboration, planning, and recommendations at the state and national levels. This report summarizes the goals of the Self-Advocacy Summit Initiative and describes the planning, implementation, findings, outcomes, evaluation, and feedback of the events.

The Association of University Centers on Disabilities (AUCD) and its Council on Community Advocacy (COCA) collaborated on a participatory action research project exploring meaningful participation and effectiveness of Consumer Advisory Committees (CACs) at University Centers for Excellence in Developmental Disabilities (UCEDDs).

Mother Nature can create emergencies for everyone, including people with intellectual/developmental disabilities (IDD). However, few Oklahomans with IDD have emergency plans in place. OKSAN (Oklahoma Self-Advocacy Network), a collaborative project facilitated by the Oklahoma UCEDD, has partnered with the American Red Cross to create an emergency preparedness training and workbook curriculum by Oklahoma self-advocates for Oklahoma self-advocates.

Materials and Power Points from the May 15 Mathematica Center for Studying Disability webinar. Materials and Power Points from the May 15 Mathematica Center for Studying Disability webinar. Materials and Power Points from the May 15 Mathematica Center for Studying Disability webinar.

The COCA Experience: A Framework for Leadership and Advocacy within the AUCD Network for Persons with Disabilities and Family Members

Every young person who grows up with or acquires a disability has to learn how to talk about, or not talk about, his or her disability. As you make the transition into adulthood, the way you talk about your disability begins to change in its importance.

Hotel Accessibility Survey

Information and materials from the CAC Orientation Webinar on September 29, 2009.

Primarily for youth and emerging leaders with disabilities, this guide is can be used by anyone to assist those with and without disabilities to learn about the rich history of people with disabilities.

NDCPD CAC

Photovoice blends a grassroots approach to photography and social action. It provides cameras not to policy makers, or professionals, but to people with limited access to decision-makers. Photovoice has three goals. It gives people a way to record and reflect their strengths and challenges. It promotes conversation about important issues through group discussion and photographs. Finally, it engages policymakers. It entrusts people with an opportunity to use cameras as a means of recording community conditions and in becoming potential catalysts for social action and change, in their community.

A Report on the Photovoice Projectx.pdf [download]

This curriculum is intended to provide UCEDDs with resources that will assist in the orientation of members of their CAC. The curriculum is meant for use by a CAC leader and/or UCEDD staff/Director to employ with potential, new, or existing CAC members as a way to introduce them to their role in advising the UCEDD. The curriculum consists of 5 modules, each containing slides and an instructor's manual, along with a number of useful appendices. The curriculum has been deliberately designed to be customizable by each UCEDD.

Articles, resources, and tips on participatory action research from the Beach Center on Disability's website.

The North Dakota UCEDD at Minot State University developed this an interactive power point presentation to assist UCEDDs and other organizations in obtaining consumer input in the development of future goals and outcomes. The tool helps people think about past, present, and future trends in 10 topic areas important to individuals with disabilities and their families, encouraging them to suggest future activities that are needed in areas of training, research, and service.

futurethink.pdf [download]

The North Dakota UCEDD at Minot State University developed this power point presentation to assist staff in making presentations to consumer advisory committees. The presentation provides tips and raises awareness to accommodations that may be necessary when presenting.

presentations for cacs minotstate 2005.pdf [download]

COCA is assisting with a technical assistance project through ADD on consumer advisory committees. The project will gather input from UCEDD Directors and consumer advisory committee members concerning the effectiveness of CACs, supports necessary for meaningful participation, feedback on CACs, and innovative practices in CACs.

The "keeper of respect" is a tool to help monitor and ensure full participation of everyone in board and committee meetings.

The Waisman Center, Wisconsin UCEDD, presented this poster presentation at the 2004 AUCD Annual Meeting on restructuring a constituent advisory committee for meaningful involvement.

restructuring cac waisman.pdf [download]

The University of New Mexico UCEDD has developed this curriculum to provide pratical information and strategies for full membership and participation on consumer advisory committees.

beyond tokenism unm2004.pdf [download]

These bylaws may be helpful to other UCEDDs and consumer advisory councils.

maine cac bylaws 010104.pdf [download]

Articles on supporting leadership and inclusion of individuals with developmental disabilities on boards and committees, 1997.