Resources
CORE Publications
-
The COVID-19 Pandemic and People with Disabilities: Primary Concerns, the AUCD Network Response, and Needs for the Future
While the COVID-19 pandemic has impacted how individuals worldwide live, work, communicate, and receive medical care and education, it has further illustrated the disproportionate gaps that exist for people with disabilities to receive these same resources and services necessary for survival and quality of life. The Association of University Centers on Disabilities (AUCD) has identified, responded to, advocated for, and addressed the needs of people with disabilities throughout the pandemic.
- AUCD 360 - January 2021
-
Setting global research priorities for developmental disabilities, including intellectual disabilities and autism
Journal of Intellectual Disability Research
The prevalence of intellectual disabilities (ID) has been estimated at 10.4/1000 worldwide with higher rates among children and adolescents in lower income countries. The objective of this paper is to address research priorities for development disabilities, notably ID and autism, at the global level and to propose the more rational use of scarce funds in addressing this under-investigated area.
-
An overview of the NASDDDS/AUCD evidence-based policy initiative
In 2010 the National Association of State Director of Developmental Disabilities Services (NASDDDS) and the Association of university centers on Disability (AUCD) entered into a partnership to develop products and activities that would promote evidence-based policymaking. These documents present an overview of the NASDDDS/AUCD evidence-based policy initiative
-
AUCD 2011 Annual Meeting Presentations: Evidence-Based Policy Workshop
These four presentations were presented at a workshop at AUCD's annual meeting on November 6, 2011. This workshop, sponsored by the Council on Research and Evaluation (CORE), provided an overview and discussion of the Evidence-Based Policy Initiative and creating Evidence-Based Policy Briefs.
-
Ready and Able: Addressing Labor Market Needs and Building Productive Careers for People with Disabilities Through Collaborative Approaches
People with disabilities can work and want to work. Increasing the employment of people with disabilities produces significant benefits to the economy, the nation, and people with disabilities themselves. This resource is the product of research with the goal to identify successful elements of strategies and offer lessons that can be learned by employers and employer organizations, workforce development and disability service organizations, and federal, state, and local policymakers.
-
Rising Expectations: The Developmental Disabilities Act Revisited
Published by the National Council on Disabilities, this report describes a year-long study of the State DD Councils, P&A's, UCEDDs and Projects of National Significance authorized under the DD ACT. The favorable evaluation also contains recommendations for each of the programs and ADD.
- Release of 2005-2006 Data from the National Survey of CSHCN
- MRDD Research Reviews Journal special issue: Families of children with developmental disabilities
-
Research Interests and Expertise
CORE conducted a survey to identify special research interests and expertise of researchers across the network that can be used to assist other members of the network. The results have been compiled in an inventory.
-
Massachusetts Measures Would Require Hospitals to Collect More Detailed Patient Data
from http://www.rwjf.org
In an effort to help reduce racial and ethnic health care disparities, proposed new regulations would require Massachusetts hospitals to collect more detailed data about patients' race, ethnicity, preferred language and education level, the Boston Globe reports.
-
A preliminary study of screening for risk of autism in children with fragile X syndrome: testing two risk cut-offs for the Checklist for Autism in Toddlers
OBJECTIVE: Risk criteria for the Checklist for Autism in Toddlers (CHAT) and modified risk criteria (i.e. the Denver Criteria) were compared in a group of children with fragile X syndrome (FXS) and autism. METHOD: Participants were 17 children aged 2-4 years with DNA confirmation of FXS. Four children had autism and 13 children did not. RESULTS: Preliminary findings regarding the sensitivity and specificity of the CHAT for detecting risk for autism in children with FXS are as follows: using the original CHAT risk criteria, sensitivity and specificity were 50% and 100%, respectively; and using the Denver Criteria, sensitivity and specificity were 75% and 92%, respectively. CONCLUSIONS: The CHAT and the Denver Criteria resulted in preliminary findings suggesting high levels of sensitivity to autism in children with FXS.