Prevention & Wellness

 
In 2007 the US Department of Health and Human Services put an emphasis on the health and wellness of individuals with disabilities. Following are some news items, resources, events, and summaries of current legislation in this area.
 
 

News

  • Local Partnership Leads to International Connections (MT UCEDD)

    In the fall of 2018, the Rural Institute for Inclusive Communities at the University of Montana (UM) and Summit Independent Living Center hosted Ms. Nguyen Thi Van, from Hanoi, Vietnam, who was visiting Missoula, MT as a Mansfield Center Professional Fellow. Van represents two organizations that provide vocational training and independent living skills for people with disabilities in Vietnam.

  • OHSU UCEDD CAC Awards Community Grants for Good (OR UCEDD)

    The UCEDD in the Institute on Development and Disability at OHSU Community Advisory Committee, also known as the Community Partners Council (CPC), has been awarding small grants to the community for seven years now and has funded 32 community projects. At their most recent quarterly meeting, they voted to fund six projects this fiscal year through their Community Engagement Grant program.

  • OHSU UCEDD Announces the Sexual Health Resources Hub is Live

    The UCEDD at Oregon Health & Science University is excited announce that the Sexual Health Resources hub, featured on our website, is live. Developed as part of the Sexual Health Equity for Individuals with Intellectual/Developmental Disabilities (SHEIDD) project, a collaboration with Multnomah County in Portland, OR, this hub provides resources to promote holistic sexual health education for people with I/DD.

  • Tuesdays With Liz: Jerry Alliston on Emergency Preparedness

    This episode of Tuesdays with Liz is dedicated to the importance of emergency preparedness for people with disabilities. Liz interviews Jerry Alliston (Community Education Director at the Mississippi UCEDD) about his experience and lessons learned during Hurricane Katrina in 2005.

  • Access All Day (OH UCEDD/LEND)

    The LEND Program at the University of Cincinnati UCEDD provides training to Cincinnati Zoo and Botanical Garden staff to help make the zoo more accessible for people with disabilities and their families. The last two years, the zoo has hosted an Access for All Day, where they invite the community to take part in the progress they've made to make the zoo more accessible such as: adult changing tables, sensory friendly restrooms, planning maps, social narratives, visual supports, sensory bags and more.

  • Promising Vanderbilt Kennedy Center (IDDRC, UCEDD, LEND) Study on Treating Core Symptoms in Rett Syndrome Supports Further Trials

    Vanderbilt Kennedy Center (IDDRC, UCEDD, LEND) Director Jeffrey Neul, M.D., Ph.D., and colleagues studied the safety and effectiveness of the drug trofinetide in female children and adolescents (age 5-15) with Rett syndrome (RTT). Findings were recently published in the journal Neurology and show promise for improving core features associated with the rare disease, supporting further trials.

 
 

Upcoming Events

Newborn Screening for Fragile X Syndrome and Other Developmental Disabilities

Newborn Screening for Fragile X Syndrome and Other Developmental Disabilities  Copy to Calendar

Tuesday, October 22, 2019
3:00 p.m. - 4:00 p.m. ET
Location: Webinar

Most professional believe that early intervention (EI) is essential to improving outcomes for children with intellectual and developmental disabilities (IDD) and their families. But how early is "early?" Should screening identify newborns with IDD, even before symptoms appear? Is there value in "pre-symptomatic" EI for children or families? Are pre-symptomatic treatments powerful enough to alter developmental trajectories in meaningful ways? Using fragile X syndrome to exemplify these issues, this presentation describes Early Check, a research program in which screening newborns for several disorders is offered to 120,000 families per year.

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Past Events

NEW EI/ECSE Standards- Why? When? Next Steps

NEW EI/ECSE Standards- Why? When? Next Steps  Copy to Calendar

Tuesday, September 24, 2019
3:00 p.m. - 4:00 p.m. ET
Location: Webinar

The Division for Early Childhood of the Council for Exceptional Children is in the process of developing the first ever, stand alone, Early Intervention/Early Childhood Special Education Personnel Preparation Standards. Learn more about the standards,what led to this important step forward for the EI/ECSE workforce and what it means to the Early Childhood Field/Systems. We will share opportunities to provide feedback to the DEC Standards Development Task Force.

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Continuing Education Seminar Room to Grow: Journey to Cultural and Linguistic Competency Conference

Continuing Education Seminar Room to Grow: Journey to Cultural and Linguistic Competency Conference "Ensuring Enclusion"  Copy to Calendar

Tuesday, September 17, 2019
8:00 a.m. - 4:00 p.m. ET
Location: Baltimore, MD

Each year the Center for Diversity in Public Health Leadership Training organizes the Room to Grow: Journey to Cultural and Linguistic Competency. The conference brings national speakers to present on the latest research and practice related to addressing and reducing socially determined health disparities.

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Resources

 
 

Related Links

 

1/1/2007

The Surgeon General's Call to Action to Improve the Health and Wellness of Persons with Disabilities

Resource Website Provided by US Department of Health and Human Services Office on Disabilities
 

More Related Links >