News / Document Search Results
1/27/2023
Biomarkers Can Help Improve Clinical Trials for Children with Neurodevelopmental Disorders
Sara Jane Webb, University of Washington IDDRC
In the past decade, many large-scale randomized controlled pharmaceutical clinical trials for children with neurodevelopmental disorders have struggled to demonstrate child clinical changes. In a recent study, researchers from University of Washington IDDRC discuss how biomarkers can help improve clinical trials for children with neurodevelopmental disorders.
1/20/2023
SPARK Uncovers Moderate-effect Genes that Cause Autism
A recent study at Baylor College of Medicine and Texas Children's Hospital-one of AUCD's Intellectual and Developmental Disability Research Centers or IDDRCs-used SPARK data to identify a new class of moderate-effect genes that are associated with less likelihood of intellectual disability and may reveal more about autism and brain development.
1/17/2023
Zebrafish Advance as a Model Organism for Fragile X Syndrome
Fragile X Syndrome is the most common inherited form of autism, caused by variants in the FMR1 gene. Scientists have developed animal models of the disorder to better understand the consequences of the genetic mutation and to see if they can intervene. In a recent study in The Journal of Neuroscience, Geoffrey Goodhill, PhD, Professor of Neuroscience and Developmental Biology at Washington University School of Medicine, and his team describe the utility of zebrafish larvae in recapitulating features of Fragile X.
1/12/2023
A Look at the Undergraduate Certificate in Universal Design
The University of Kentucky Human Development Institute offers an Undergraduate Certificate in Universal Design. In this program, students learn about and benefit from Universal Design's broad set of strategies that promote inclusion and participation of all people.
1/12/2023
Aggie ACHIEVE Program Celebrated Friendsgiving
The Aggie ACHIEVE students and staff helped prepare a turkey and cooked recipes during their independent living seminar. Everyone helped contribute to the pot luck and they celebrated inclusion with their Aggie ACHIEVEMates.
1/12/2023
An Overview of the Resource Finder at the Maryland Center for Developmental Disabilities
The Resource Finder is a project of the Maryland Center for Developmental Disabilities (MCDD), housed within Kennedy Krieger Institute. The project provides a valuable tool for patients, students, families, and professionals, allowing them to obtain information and access resources on intellectual and developmental disabilities. Community members can call, email or submit an online form requesting information, resources, or services based on their specific needs. The program coordinator, Kristine Nellenbach, compiles and disseminates personalized resources and information in response to every inquiry that is received. The Resource Finder is available to anyone, regardless of age, location, language, or disability.
1/12/2023
Delaware LEND Gets New Co-director
Dr. Sarah Mallory has joined Dr. Beth Mineo as co-director of the Delaware LEND program, led by the University of Delaware's Center for Disabilities Studies. The Delaware LEND is part of a "national network" of training programs for pre-professionals, professionals, self-advocates and family members that promotes interdisciplinary, culturally competent, family-centered care.
1/12/2023
Dr. Arnold receives the American Psychiatric Assocation's 2023 Frank J. Menolascino Award
Congratulations to Dr. Arnold at The Ohio State University Nisonger Center who will receive the American Psychiatric Assocation's 2023 Frank J. Menolascino Award for Psychiatric Services for Persons with Intellectual Disability/Developmental Disabilities. This award will be presented at the APA Annual Meeting in May.
1/12/2023
GEAR UP's First Faculty Fellow, Mrs. Young-Weatherspoon from Hearne High School
The Heart of Texas GEAR UP program is a grant project funded through the U.S. Department of Education. The goal of this project is to support and empower the Class of 2026 to fulfill their potential in order to achieve post high school success. The Heart of Texas GEAR UP is partnered with Bryan and Hearne ISDs to serve students in the class of 2026.
1/12/2023
HDI Diversity, Equity and Inclusion Director Invites Wider UK Community to Seek Out HDI Resources
"There's only so much time on this earth, and the majority of our life is really spent asleep. Next to that, it's spent at work," said Dr. Nicholas Wright, UK Human Development Institute Director of Diversity, Equity and Inclusion. "So I want to make sure people understand they can be their authentic self. They can be genuine, and they have a sense that they matter here."
1/12/2023
HDI's New Project Aims to Enhance Photography of People with Disabilities
A newly funded Fund for Excellence Project, will provide HDI and other organizations with accurate photographs of people with disabilities and will also provide a modeling opportunity for people with disabilities.
1/12/2023
Iowa's UCEDD Leads EPSDT Shared Language Initiative
The Care for Kids grant program team at Iowa's Center for Disabilities and Development (CDD, Iowa's UCEDD) is leading a Shared Language Initiative to support the work of the state's Early and Periodic Screening, Diagnosis and Treatment (EPSDT) interagency stakeholder workgroup. The Shared Language Initiative is intended to develop a list of common terms and concepts to be used by our stakeholder workgroup and agencies to make it easier for patients, families, and providers to better understand EPSDT benefits and how they differ from other insurance benefits like CHIP. The Initiative will also support statewide efforts to promote EPSDT and its services, and meet EPSDT goals.
1/12/2023
Jennifer Sulewski Named Associate Director and Assistant Research Professor at the Institute on Disability
The Institute on Disability is pleased to announce that Jennifer Sulewski, PhD, has been named Associate Director of the Institute on Disability (IOD), as well as Assistant Research Professor. As a Senior Research Associate and Project Manager at the Institute for Community Inclusion (ICI) at UMass Boston, Sulewski brings knowledge and an interest in community life engagement, evaluation, community building, and employment services and supports to this new and unique position at the IOD.
1/12/2023
JFK Partners Approved for $2,780,297 Million for a Study Comparing Approaches of Two School-Based Interventions to Manage Anxiety in Autistic Students
Funds awarded by the Patient-Centered Outcomes Research Institute
A research team at University of Colorado School of Medicine, JFK Partners, led by Judy Reaven, Ph.D. has been approved for a $2,780,297 million funding award by the Patient-Centered Outcomes Research Institute (PCORI) to study A Comparison of Two School-Based Interventions to Manage Anxiety in Autistic Students.
1/12/2023
Kentucky Employment First Welcomes Katie Wolf Whaley as New Council Chair
On December 2nd, 2022, Kentucky welcomed Katie Wolf Whaley as the new chair of Kentucky's Employment First Council. Employment First practices the idea that competitive integrated employment should be considered the first and primary option for people with disabilities who are eligible and desire to be employed. Simply put, it is the idea that everyone has the right to work!
1/12/2023
Marnie Morneault Appointed as Chair of Maine's Interagency Coordinating Council (ME UCEDD)
Marnie Morneault, a research associate from the University of Maine Center for Community Inclusion and Disability Studies (ME UCEDD) has been appointed as Chair of Maine's Interagency Coordinating Council (ICC). The ICC is a required component of the early intervention system in every state.
