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Telehealth: What is it? And how to make it work for you!

The University Center for Excellence in Developmental Disabilities at the Oregon Health & Science University is excited to share a recently created series of 4 animated video modules on Telehealth. They were designed for adults with I/DD and, more specifically, for people who use communication supports. They would also be appropriate for kids (and families), and individuals who experience cognitive or language or literacy challenges.



TOPS Program Celebrates Ten Years of Promoting Inclusion at Ohio State

The Transitions Options in Postsecondary Settings (TOPS) Program at The Ohio State University Nisonger Center is celebrating its tenth year of providing alternative college experiences for young adults with intellectual and developmental disabilities. O



US Commission Urges Repeal of Subminimum Wage After VT Visit

In a report published on September 17, 2020, the U.S. Commission on Civil Rights recommended repealing section 14(c) of the Fair Labor Standards Act which permits employers to pay less than the minimum wage to individuals with disabilities. During the agency's investigation, they heard testimony from Dr. Bryan Dague before coming to Vermont as one of two field visits to employment and service provision sites.



I Vote Because...

AUCD is excited to join partners across the disability community working to increase the political power of people with disabilities by sharing resources, getting folks registered, supporting voters in navigating the planning processes, and making sure that we are all voters in 2020. This effort includes plans to continuously share information and resources up to Election Day: November 3, 2020.



MN UCEDD Pinpoints Autism's Reach

To better quantify the prevalence of autism across Minnesota, investigators at University of Minnesota's Institute on Community Integration (MN UCEDD) will tap into large statewide education and social services databases under a new grant from the Centers for Disease Control and Prevention (CDC).



MNLEND Trainee jumps into coordinating a public health response to COVID with community partners

Whitney Terrill typically supports Minnesotans living with disabilities to access home and community based services through her role at the Minnesota Department of Human Services, Disability Services Division Fiscal Policy Team. Whitney is deeply interested in value and outcomes based payment design, and currently works on a legislatively mandated project to explore options for how Minnesota might pay for disability services in the future.



Edward Esbeck Leads the Way for Iowa's Self-Advocates

Before 2020, Iowa's LEND program did not have a Self-Advocacy Coordinator serving as Core Faculty for trainees in the program. Before 2019, Iowa's UCEDD, the Center for Disabilities and Development (CDD), did not have a Self-Advocacy Coordinator as a member of its staff. Before 2017, Iowa LEND had never had a Self-Advocacy Trainee. But since 2016, when he became a member of the UCEDD's Community Advisory Committee, CDD has had Ed Esbeck. For the past year, since he was hired as CDD's Self-Advocacy Coordinator in the fall of 2019, Esbeck has championed inclusion for Iowa LEND, and has led the way for more self-advocates to become leaders, as he has.



Georgia State University UCEDD Trainees Step-up for COVID-Tracing Research

Universities across the country are adapting to take on the unique challenges COVID-19 has brought to their campuses and larger communities. The Georgia Department of Public Health (GaDPH) offered opportunities for public health students and alumni at Georgia State University (GSU) to train and serve as contact tracers who work to track and prevent further spread of COVID-19. Students were assigned to work as contract tracers within any one of the 18 public health districts in Georgia. Three students affiliated with the Center for Leadership in Disability (CLD) at GSU have engaged in the volunteer-led contact tracing effort.



Staying Connected During COVID-19: Waisman Center Outreach Supports AAC Remotely

The Communication Development Program (CDP) is an outreach program of the Waisman Center UCEDD at University of Wisconsin, Madison. This program was developed over 30 years ago in partnership with the Dane County Department of Human Services, and specifically the Intellectual and Developmental Disabilities (IDD) unit. The mission of CDP is to enhance community participation, health, safety, and self-determination for individuals with disabilities through specialized Augmentative and Alternative Communication (AAC) and Assistive Technology (AT) services.



Transition Supports for Parents with Intellectual and Developmental Disabilities Partnership (Georgetown UCEDD)

The Georgetown University Center for Excellence in Developmental Disabilities (GUCEDD) is one of 10 programs awarded a Community Based Transition Partnership Planning grant from the Administration for Community Living (ACL), Administration on Disabilities (AoD) ( The goal of the grant is to convene a partnership in the District of Columbia to develop a sustainable plan that addresses the unique needs of parents with intellectual and developmental disabilities (IDD) to support the transition of their children with and without disabilities throughout the life course.



Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) investigators to lead $5 million NSF-funded expansion of ASD workforce program

The National Science Foundation has awarded a highly competitive $5 million grant to multiple Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) (VKC) researchers to greatly expand a project for creating novel artificial intelligence (AI) technology and tools and platforms that train and support individuals with autism spectrum disorders in the workplace.



WVU CED Launches New Website to Provide Resources for Families Impacted by Substance Use Disorders

The WVU Center for Excellence in Disabilities (CED) launched a new website designed to provide resources to help educate families and providers on the effects of substance use on the family unit and child development.



America at a glance: Social isolation and loneliness during the first wave of COVID-19 Organization: RTC:Rural

America at a glance: Social isolation and loneliness Before the current pandemic, people with disabilities reported significantly higher rates of social isolation and loneliness than those without disabilities. When restrictions are put in place to help protect people from COVID-19, what happens to these rates? RTC:Rural's newest research brief explores how COVID-19 and public health responses may contribute to feelings of social isolation and loneliness among people with disabilities.



Office of Health, Equity, Inclusion and Diversity Opens at Kennedy Krieger

The office is preceded by yearslong efforts encouraging equity, inclusion and diversity at the Institute and in the community.

Kennedy Krieger Institute's new Office of Health, Equity, Inclusion and Diversity (O-HEID), established last month, represents a significant step in the Institute's journey to cultivate and encourage a community of equity, inclusion and diversity.



Closing gaps: Autism's health disparities

The MN UCEDD has joined a national research network that aims to improve the physical health and well-being of children and adults with autism. Led by UCLA and some of America's best autism researchers, the multidisciplinary team will study autism as it relates to overall healthcare access and quality, primary care utilization, physical activity, stress, sleep, substance abuse, sexual health, neurological issues, and genetics, among others. The project will also explore healthcare disparities among women and people from underserved or vulnerable populations.



Georgia UCEDD Researches Effects of COVID-19 on Adults with IDD & DSPs

Since the emergence of the novel Coronavirus (COVID-19) last year, and its subsequent spread into a pandemic, we have seen a number of communities step up to face this unique challenge. Many doctors, scientists, community leaders, and politicians are using their strengths to combat this disease. Researchers too, are facing a new struggle to address what happens during and after COVID-19 affects the daily lives of millions of people.

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