AIR-P Presents: Genomics for the well-being of autistic people: challenges and recommendations

AIR-P Presents: Genomics for the well-being of autistic people: challenges and recommendations

Archived Recording
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Tuesday, June 20, 2023
4:00pm ET - 5:00pm ET
Location: Zoom

Webinar Description

Equitable and just genetic research requires an examination of the ethical questions pertaining to marginalized communities. Many have expressed concerns over current practices of autism-related genetic research, urging the field to shift towards practices that ensure benefits and protect against harm. As an interdisciplinary working group of autistic and non-autistic individuals, we have developed guidelines for leveraging genetics to enhance the quality of life, health, and autonomy of autistic persons.


Dr. Heini Natri is a computational scientist, functional genomicist, and advocate for socially responsible research. At The Translational Genomics Research Institute, my work involves integrating various types of genetic and molecular data to understand genetic variation and its functional consequences in the context of health and disease. In my bioethics-related work, I focus on questions at the intersection of genetics, bioethics, disability, and identity, and the ethical, legal, and societal implications of the implementation of genetic information in research and clinical decision-making. Supported by The Autism Intervention Research Network on Physical Health, I have lead a workgroup of geneticists, bioethicists, clinicians, and autism scholars in an effort to develop a framework for ethically responsible autism-related genomics research that respects stakeholders and has the potential to positively influence the well-being of autistic people.

Please Note

  • CART captioning will be provided. For additional disability accommodations please email Elizabeth Schnieder at [email protected] two weeks prior to the event with name of event and accommodation preference in your response.
  • There is no cost for this webinar.
  • CEUs are not offered for this webinar.
  • This webinar will be held on the Zoom Platform. You can test your connection with Zoom before joining the meeting here.
  • This webinar will be archived available on the AUCD Webinar Library.