Key Issues in Healthcare Decision Making and Care at End of Life


doc File Aging Webinar Series 2009 Kingsbury Announcement.doc (31KB) [download]

ppt File Kingsbury.aaidd webinar.9.2009.ppt (909KB) [download]

Wednesday, September 16, 2009- Wednesday, September 16, 2009
1:00 pm - 2:00 pm
Location: online


Sponsored By

 AAIDD - AUCD - The ArcUS -  ANCOR - AAIDD Gerontology Division -   UIC RRTC on Aging & DD

Date:  Wednesday,  September 16, 2009

Time:  1:00-2:00 pm


Topic:  Key Issues in Healthcare Decision Making and Care at End of Life: How to use person-centered practices to support quality planning with people with critical, chronic and/or terminal illnesses.

Speaker: Leigh Ann Creaney Kingsbury, MPA, Gerontologist

Leigh Ann is one of a small group of professionals actively working on using person-centered practices for planning around healthcare decision making and care at end of life. She was an invited contributor for an expert panel convened to report to Congress; she is the author of People Planning Ahead: A Guide to Communicating Healthcare and End of Life Wishes, published by the AAIDD in December 2008 and several other articles regarding planning and care at end of life.

Webinar Description:  As people with intellectual and/or developmental disabilities have more opportunities for decision making and are living to old age; and as family caregivers are aging, the need to think about healthcare decision making, advance directives and wishes about end of life care is rapidly increasing. It is critical as systems and providers of support services that we begin to help people with ID/DD identify surrogate decision makers for healthcare, should one be unable at any point in time to make his/her own decisions. This presentation will discuss some of the key issues we need to be aware of related to decision making and care at end life, including capacity, competency and how to identify surrogate decision makers.

Target Audience:  Executive leadership; QDDP's; ISP/IHP writers, person centered plan developers




3rd Wednesday of the Month

1:00 - 2:00 p.m. Eastern Time


October 21st:  COMPETENCE AND COMPASSION - Critical Qualities in Effective Supports for Individuals with Dementia

Speaker:  Genny Pugh, MS, LPA, FAAIDD, Executive Director, Turning Point Services,  Inc.    


November 18th:  Aging and End of Life:  Crisis or Opportunity?

Speaker:   Bill Gaventa, M.Div., Associate Professor, Pediatrics, Community & Congregational Supports, The Elizabeth M. Boggs Center on Developmental Disabilities, Robert Wood Johnson Medical School/UMDNJ


December 16th:  End of Life Through a Cultural Lens

Speaker:  Tawara Goode, PhD, Associate Director Georgetown UCEDD, Georgetown University Center for Child and Human Development


January 20th: Topic  Pending

Speaker:  To Be Determined


February 17th:  Principles of Medical Ethics in Health Care Provision

Speaker:  Michael Henderson, M.D. University of Rochester, Strong Medical Center