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AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

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AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

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AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

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Project

15q Clinical Research Network Site

Center:

NC-Carolina Institute for Developmental Disabilities, UCEDD/LEND

Fiscal Year:

2025

Contact Information:

Margaret DeRamus
[email protected]
919-966-5171

Project Description:

The purpose of this Agreement for the "University of North Carolina at Chapel Hill for its Carolina Institute for Developmental Disabilities in the School of Medicine" (hereinafter referred to as "UNC-CH") to supply and/or provide the Angelman Syndrome Foundation, a nonprofit corporation, and the Dup15q Alliance, a nonprofit corporation ("the 15q Parties") permission to access, use and disclose Participant/Patient Data for their 15q Clinical Research Network (CRN) projects while also enabling UNC-CH to use such reports, tools, and resources of the 15q CRN projects to support health care operations, quality improvement activities, and research.

Keyword(s):

Developmental Disabilities, Children, Adolescents, and Young Adults with Special Health Care Needs

Core Function(s):

Training Trainees, Performing Direct and/or Demonstration Services, Performing Research or Evaluation, Developing & Disseminating Information

Area of Emphasis

Education & Early Intervention, Health-Related Activities

Target Audience:

Professionals and Para-Professionals, Family Members/Caregivers, Children/Adolescents with Disabilities/SHCN

Unserved or Under-served Populations:

Specific Groups

Primary Target Audience Geographic Descriptor:

State, National