AUCD | Speak Up For UCEDDs

Whats going on?

Here's what you need to know.

The FY26 Budget Proposal calls for the elimination of UCEDDs as independent programs.

The President's Budget Proposal folds the UCEDDs' funding and four other unique programs into the Independent Living (IL) program* under a single, broad budget. Combining these programs will make these systems inefficient, directly conflict with federal law, and result in immense nationwide harm for people with disabilities, research institutions, and the disability workforce.

This will have a dire impact on the disability population.

UCEDDs have been supporting people with disabilities for over 60 years through research, training, and community services. Our independence has allowed us to work efficiently and effectively with other Independent Living programs to advance services and supports for families.

The Administration’s FY26 budget proposal risks dismantling this essential infrastructure.

*Projects of National Significance (PNS), Limb Loss Resource Center, Paralysis Resource Center, and the Voting Access for People with Disabilities Program.

Why UCEDDs Matter

UCEDDs Provide:

- Technical Assistance
  We help people find resources and answers to important questions around disability services and supports
- Continuing Education
  We teach professionals, families, and other stakeholders on how they can better serve the disability community
- Diagnostic Services
  We provide clinical and research services that help individuals receive evaluations for developmental disabilities, therapies, and a wide range of additional supports.

Network Impact:

- 68 UCEDDs across the country work to build and strengthen communities that allow for independent living and full participation for people with disabilities.
- 60 LEND programs provide training for professionals and community leaders on how to better serve people on the autism spectrum disorder and other neurodevelopmental disabilities. Trainees of the LEND program learn about person- and family-centered care.
- 15 IDDRCs conduct biomedical research and behavioral research to better understand intellectual and developmental disabilities and provide recommendations and improvements to the services and supports systems.

What Can You Do

Call or Email Your Elected Representatives:

- Speak up and spread the word!
- UCEDDs are essential for disability research, training, and services. The FY26 budget proposal threatens their future.
- Contact your Senators and Representatives today and urge them to protect UCEDDs!

Talking points can include:

- How have you been impacted by UCEDDs?
- Have you received training or been a part of research initiatives? Tell them!
- Share that these are important independent entities in the community. And they need to stay that way!

Key Dates to Know

Timeline:

- The House LHHS Markups: The House Subcommittee markup for the FY26 Labor-HHS (LHHS) bill is scheduled for Monday, July 21st at 5 pm ET, followed by a full Committee markup on Thursday, July 24th at 10 am ET.
- US Senate FY26 Budget Timeline: US Senate FY26 Budget Timeline: Information regarding the Senate's FY26 budget timeline, specifically for appropriations markups, is less certain. Senate Appropriations Committee Chair Susan Collins has indicated that a decision on a "topline funding number" is not anticipated until after Congress has passed the budget reconciliation package, which refers to H.R.1., or the "One Big, Beautiful Bill". Now that H.R.1 has become law, it is important that we focus on educating lawmakers on the important work the UCEDDs do and the need to protect their funding and funding for other disability programs.

Use These Tools to Speak Out!

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