Project Description:
The CIDD subcontracts with the Quality Management Team of the NC Department of Health and Human Services to conduct part of the North Carolina Core Indicators (NCI). The NCI is a national effort to collect information on the effectiveness of state developmental disabilities services in a format that can be compared across states and that can be used to benchmark progress within states. The subcontract involves a survey of up to 850 adults receiving services from Area Programs. The CIDD develops survey forms in a format that can be scanned, receives 2 random samples from data submitted by Area Programs, recruits surveyors, trains them, distributes surveys in an appropriate manner, collects the survey data, checks the data for completeness and accuracy and scans the data into a database. One part of the survey is conducted in person with individuals with disabilities. Another section is completed either with the consumer or another respondent (family, advocate, staff). The CIDD staff is responsible for collecting response forms and managing the database.
NCODH-NCI Data Collection Project
The North Carolina Office on Disability and Health (NCODH) is a partnership initiative of the Children and Youth Branch, Women's and Children's Health Section, Division of Public Health (DPH) and the FPG Child Development Institute at the University of North Carolina at Chapel Hill (FPG CDI). The primary mission of the NCODH is to promote the health of people with disabilities, prevent secondary conditions, and eliminate disparities between people with and without disabilities in North Carolina. Core funding for NCODH is from the Centers for Disease Control and Prevention.
In 1999, NCODH formed a partnership with the NC Division of Mental Health, Developmental Disabilities, and Substance Abuse Services and the UNC-CH CIDD to develop a mechanism for the collection of baseline health related data on adults with intellectual/ developmental disabilities served by the state service system. This was needed as most public health data systems, including the Behavioral Risk Factor Surveillance System (BRFSS) do not capture the health status of adult with developmental disabilities. NCODH and CIDD developed a health addendum modeled after NC BRFSS content and questions. This allows for a comparison between groups: persons with disabilities, persons without disabilities and persons with I/DD receiving state supported services. The NC National Core Indicators has documented that adults with I/DD have the same or greater health risks as the general population. The NC NCI data enable NCODH and others to target specific areas of concern, such as sedentary lifestyle, obesity, mammography screening, and dental care.
Unserved or Under-served Populations:
Geographic Areas, Geographic Area - Other, Other
