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Project

Improving Health Care Communication and Engagement for Adults with Down syndrome

Center:

CO-JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND

Fiscal Year:

2026

Contact Information:

Jessica Sanders
[email protected]
720-777-6134

Project Description:

(1) Analyze communication quality in adult primary care encounters with adults with Down syndrome using the unique qualitative method of Conversation Analysis; (2) adapt a patient-and-supporter-driven communication tool that meets the unique needs of adults with Down syndrome who have intellectual disability and come to clinic with a supporter; and (3) conduct a pragmatic pilot acceptability and feasibility trial of the adapted tool with adult clinicians, adults with Down syndrome, and their supporters. Adults with Down syndrome age 18 years old and older are eligible for the study.

Keyword(s):

Developmental Disabilities, Life Course Approach, Mental/Behavioral Health – General , Social Determinants of Health, Children, Adolescents, and Young Adults with Special Health Care Needs

Core Function(s):

Performing Research or Evaluation

Area of Emphasis

Health-Related Activities

Target Audience:

Professionals and Para-Professionals, Family Members/Caregivers

Unserved or Under-served Populations:

Specific Groups

Primary Target Audience Geographic Descriptor:

State

Funding Source:

Federal