ACS Medicaid HCBS (Home and Community-Based Services) Waitlist Assessment and Person-Centered Support for People with IDD
Project Description:
The goal of this project is to propose a sustainable multipronged approach to address Medicaid home and community-based services waitlists and improve community living and participation of people with I/DD. The objectives of this project are to (1) examine effects of Medicaid policies on HCBS waitlists, HCBS use, health outcomes, and community living and participation among people with I/DD; (2) to develop and test a person-centered needs assessment tool (PC-NAT) that helps individuals with I/DD on waitlists and their families better articulate their HCBS needs and informs state policies on waitlist management and improving HCBS for people with I/DD; and (3) create resources to support people with I/DD and their families in navigating HCBS waitlists. The chief expected products are (1) policy briefs describing effective HCBS delivery, payment and workforce policies that improve HCBS for people with I/DD; and (2) online toolkit to people with I/DD and
their families navigate HCBS waitlists and identify non-Medicaid, community-based supports while waiting for HCBS waiver services. Long term outcomes include improved services to and quality of life (QOL) for people with I/DD; increased meaningful community living and participation of people with I/DD; and state HCBS policies and practices aligned with needs of people with I/DD. ICI is a subcontractor on this project, and will collaborate with AIR, NASDDDS, ICI, and Green Mountain Self Advocates, and an Advisory Board with both community and state perspectives.
Keyword(s):
Developmental Disabilities, Medicaid policy, HCBS use and outcomes
Core Function(s):
Performing Research or Evaluation, Developing & Disseminating Information
Area of Emphasis
Quality Assurance, Housing-Related Activities, Quality of Life
Target Audience:
Family Members/Caregivers, Adults with Disabilities, Legislators/Policy Makers
Unserved or Under-served Populations:
None
Primary Target Audience Geographic Descriptor:
National
COVID-19 Related Data:
N/A
