A National Assessment of Training and Support for Parents with Intellectual and Developmental Disabilities
Project Description:
Parents with with intellectual and developmental disabilities (IDD) are disproportionately at risk of having their parental rights terminated. There is a need to collect information about programs and supports for this population The project is using community-based participatory research (CBPR) and mixed methods approaches to reduce critical knowledge gaps regarding the provision of training and support to parents with IDD. The specific aims of the project are to: 1. Conduct a national scan and content analysis of all programs and curriculums offered through each state and territory's developmental disabilities agencies, child welfare agencies, developmental disabilities networks (e.g., University of Excellence in Developmental Disabilities, Developmental Disability [UCEDDs]) and provider agencies for adults with IDD (e.g., ARCs). This will include an assessment of disparities in identification, enrollment, and retention of parents with IDD, and outcomes across multilevel domains (e.g., parent demographics, disability level, implementing agency sector, size, geography); 2. Examine perceptions of professionals who provide training and support to parents with IDD about implementation challenges and recommendations for improvement, and perceptions of mothers with IDD about their needs and satisfaction with services they have received. We will conduct online surveys with a national sample of service providers. The outcome is a paper summarizing findings.
Keyword(s):
Developmental Disabilities, Early Childhood – Developmental Health (including developmental screening), Early Childhood – General, Parents with IDD
Core Function(s):
Performing Research or Evaluation, Developing & Disseminating Information
Area of Emphasis
Quality of Life
Target Audience:
Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities, General Public
Unserved or Under-served Populations:
Racial or Ethnic Minorities, Disadvantaged Circumstances, Limited English, Geographic Areas, Specific Groups
Primary Target Audience Geographic Descriptor:
National
COVID-19 Related Data:
N/A
