5b Build Academic Community Partnership Capacity
Project Description:
Community-partnered participatory research increases community participation in research, improves the relevance of research to community priorities, improves translation of research findings to community settings and ensures community members, such as people with DD and their families, are active participants in the research process. CEDD will partner with the UC Davis Clinical and Translational Science Center (CTSC) to expand our current community networks (CAC and AIR-B) to provide input across MIND Institute DD studies from basic to implementation science. We will work with the CTSC to reach out to historically underrepresented populations in the Sacramento region to gather ongoing input for basic, translation, treatment and implementation research focused on DD populations. The group is to develop and implement a community training plan designed to engage potential partners and educate the community about DD. The CEDD, in collaboration with community partners, will provide training to UC Davis researchers in how to respectfully and successfully partner with community groups to ensure research questions and goals meet community needs. Training will include issues related to the intersectionality of neurodiversity and race, ethnicity, gender, sexual orientation, poverty, and mental health. The project includes partnering with the IDDRC in the development of a Community Partnership Registry of community members willing to support UC Davis researchers in developing new projects and interpreting research findings. We expect to see increased engagement of diverse stakeholders in UC Davis DD research, greater diversity of research participants, and increased community collaboration by UC Davis researchers.
Core Function(s):
Developing & Disseminating Information
Area of Emphasis
Health-Related Activities, Quality of Life
Target Audience:
Community Trainees / Short term trainees, Professionals and Para-Professionals
Unserved or Under-served Populations:
Racial or Ethnic Minorities, Disadvantaged Circumstances, Limited English, Geographic Areas
Primary Target Audience Geographic Descriptor:
State
COVID-19 Related Data:
N/A
