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Project

Project ENGAGE: Including Adults with Intellectual Disability in Precision Medicine Research

Center:

DC-Georgetown University Center for Child & Human Development, UCEDD/LEND

Fiscal Year:

2025

Contact Information:

Tawara Goode
[email protected]
202-687-5387

Project Description:

Adults with intellectual disability (ID) experience significant health disparities and may benefit from precision medicine research advances. They are underrepresented in research and understanding of solutions to the ethical, legal, and social consent-related challenges that present barriers to their inclusion in this research. This study will help researchers avoid the pitfalls of bias provide insights to precision medicine research to include adults with ID.

Keyword(s):

intellectual disability, precision medicine

Core Function(s):

Performing Research or Evaluation

Area of Emphasis

Health-Related Activities, Other - Cultural Diversity

Target Audience:

Adults with Disabilities

Unserved or Under-served Populations:

Specific Groups

Primary Target Audience Geographic Descriptor:

National