• |
  • |
  • |
  • |
Donate

Project

TRiaLS: The international Registry for Leigh Syndrome

Center:
Fiscal Year:
2024
Contact Information:
Project Description:
Title: TRiaLS: The international Registry for Leigh Syndrome Role: PI Funding: People Against Leigh Syndrome March 2015-present Summary: The international Registry for Leigh Syndrome (TRiaLS) collects clinical and contact information of persons with Leigh syndrome as a resource for investigators around the world connecting patients with researchers.
Keyword(s):
Core Function(s):
Performing Research or Evaluation, Continuing Education/Community Training
Area of Emphasis
Other
Target Audience:
Children/Adolescents with Disabilities/SHCN
Unserved or Under-served Populations:
Other
Primary Target Audience Geographic Descriptor:
National
Funding Source:
COVID-19 Related Data:
N/A