TRiaLS: The international Registry for Leigh Syndrome
Project Description:
Title: TRiaLS: The international Registry for Leigh Syndrome
Role: PI
Funding: People Against Leigh Syndrome
March 2015-present
Summary: The international Registry for Leigh Syndrome (TRiaLS) collects clinical and contact information of persons with Leigh syndrome as a resource for investigators around the world connecting patients with researchers.
Core Function(s):
Performing Research or Evaluation, Continuing Education/Community Training
Target Audience:
Children/Adolescents with Disabilities/SHCN
Unserved or Under-served Populations:
Other
Primary Target Audience Geographic Descriptor:
National
COVID-19 Related Data:
N/A