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AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

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AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

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AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

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Project

Characterizing the natural history of fragile X syndrome to inform the development of intervention outcome measures

Center:

IL-Institute on Disability & Human Development, UCEDD/LEND

Fiscal Year:

2024

Contact Information:

Anne Hoffmann
[email protected]
312-563-6559

Project Description:

2022-2026 1 U01 DD001186-01, CDC Characterizing the natural history of fragile X syndrome to inform the development of intervention outcome measures Role: Co-I (PI: Elizabeth Berry-Kravis, MD, PhD) Amount: $54,140

Keyword(s):

Core Function(s):

Performing Research or Evaluation

Area of Emphasis

Education & Early Intervention, Health-Related Activities, Quality of Life

Target Audience:

Students/Trainees (long or intermediate trainees), Community Trainees / Short term trainees, Professionals and Para-Professionals, Legislators/Policy Makers

Unserved or Under-served Populations:

Specific Groups

Primary Target Audience Geographic Descriptor:

National

Funding Source:

Federal

COVID-19 Related Data:

N/A

1100 Wayne Avenue, Suite 1000 Silver Spring, MD 20910

Mailing address:
PO Box 8787
Silver Spring, MD 20907-8787