Disseminating PCORI Results about Disabilities to African American and Hispanic Expectant Parents

2024

This project will focus on building capacity tor the dissemination at Patient Centered Outcome Research (PCOR) to Black and Hispanic new and expectant parents of children with DS. The purpose of building capacity for dissemination is to address health disparities encountered by minority children with intellectual and/or developmental disabilities. As Black and Hispanic parents of children with DS have access to PCOR research at the defining first point on the life course, they can be empowered to make informed health care decisions for their child, obtain available supports and services, and communicate with medical providers about health care recommendations for children with DS.

PCOR Lettercase Down Syndrome Minorities

Developing & Disseminating Information

Education & Early Intervention, Other - Cultural Diversity

Professionals and Para-Professionals, Family Members/Caregivers

Racial or Ethnic Minorities

National

N/A