|

AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

Learn More
|

AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

Learn More
|

AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

Learn More
|

AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

Learn More

Donate

Project

DDBS Research Registry and Database

Center:

KS-Schiefelbusch Institute for Life Span Studies, UCEDD/LEND

Fiscal Year:

2024

Contact Information:

Rene Jamison
[email protected]
913-588-5590

Project Description:

The CCHD database supports I/DD investigators in recruitment and feasibility estimates within the area of autism and other NDDs. The database includes family history, medical history, and assessment data from clinic visits, primarily interdisciplinary team evaluations for autism. the database is part of the KIDDRC Clinical Core and includes data from over 10,000 individuals.

Keyword(s):

autism, database, Redcap, CCHD, registry, DDBS, patient files

Core Function(s):

Performing Research or Evaluation

Area of Emphasis

Health-Related Activities

Target Audience:

Students/Trainees (long or intermediate trainees), Community Trainees / Short term trainees, Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities, Children/Adolescents with Disabilities/SHCN, General Public

Unserved or Under-served Populations:

Racial or Ethnic Minorities, Geographic Areas, Rural/Remote, Urban, Specific Groups

Primary Target Audience Geographic Descriptor:

Single-County, Mulit-County, State

Funding Source:

Federal

COVID-19 Related Data:

N/A

1100 Wayne Avenue, Suite 1000 Silver Spring, MD 20910