Aligning PCPs and Patients with Alzheimer's Research Efforts: My Alliance for Cognitive Health
Project Description:
The goal of this project is to create a sustainable infrastructure and process for ensuring genetic and racial/ethnic diversity of participants recruited into research trials for the prevention and treatment of Alzheimers disease. MyAlliance for Cognitive Health (MyAlliance) represents a network of Primary Care Providers (PCPs) aligned with stakeholders (KU ADC, KU Health System, researchers, and community groups) to deliver optimal dementia care to all Kansans. MyAlliance will provide community-based PCP practices with MyAlliance social work Navigators to enhance the care PCPs provide their dementia patients. In our experience and others, community-based PCP research networks fail over time as PCPs lack incentives to participate and there is little tangible value to their practice. The MyAlliance program provides clinical value to PCPs by improving their patient care in an efficient, cost-effective, and marketable way. This clinical value is the engine to ensure consistent PCP engagement over time and sustain the network to create a permanent recruitment infrastructure in the community linking, aligning, and engaging PCPs and their patients with research efforts. This R24 award will result in new approaches, content, and tools that will enhance national research recruitment efforts and work to change the culture of research recruitment in the community. Project deliverables include: A network of 120 PCPs and a research ready cohort of n=1000 dementia patients; an integrated data management solution for PCP referral, care coordination, and the screening and triage process of the centralized recruitment team; and a recognized brand supporting robust community-based outreach, education, and support through channels dedicated to 1) prevention for cognitively normal at-risk individuals and 2) education for patients and families dealing with cognitive impairment. University of Kansas Alzheimers Disease Center will lead the project. UMKC Institute for Human Development will serve as project evaluator and will participate on the project Collaborative.
Core Function(s):
Performing Research or Evaluation, Other Direct/Model Services
Area of Emphasis
Health-Related Activities, Quality of Life, Other - Cultural Diversity
Target Audience:
Professionals and Para-Professionals, Family Members/Caregivers, General Public
Unserved or Under-served Populations:
Racial or Ethnic Minorities
Primary Target Audience Geographic Descriptor:
Single-County
COVID-19 Related Data:
N/A
