|

AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

Learn More
|

AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

Learn More
|

AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

Learn More
|

AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

Learn More

Donate

Project

Oregon Spina Bifida Registry Project

Center:

OR-Oregon Institute on Development & Disability, UCEDD/LEND

Fiscal Year:

2022

Contact Information:

Kurt Freeman
[email protected]
503-494-0360

Project Description:

The Spina Bifida National Registry Initiative Research Study at OHSU is currently enrolling and tracking outcomes data on clinic patients with Spina Bifida, a developmental congenital disorder.

Keyword(s):

Spina Bifida, congenital disorder, Registry

Core Function(s):

Training Trainees, Performing Research or Evaluation, Developing & Disseminating Information, Continuing Education/Community Training

Area of Emphasis

Health-Related Activities

Target Audience:

Students/Trainees (long or intermediate trainees), Professionals and Para-Professionals, Family Members/Caregivers, Children/Adolescents with Disabilities/SHCN

Unserved or Under-served Populations:

Racial or Ethnic Minorities, Disadvantaged Circumstances, Limited English

Primary Target Audience Geographic Descriptor:

State

Funding Source:

Federal

COVID-19 Related Data:

N/A

1100 Wayne Avenue, Suite 1000 Silver Spring, MD 20910

Mailing address:
PO Box 8787
Silver Spring, MD 20907-8787