Neurogenetics Clinic

2021

The UCEDD s Neurogenetics Clinic is co sponsored by the Departments of Neurology and Medicine (Medical Genetics). The clinic s purpose is to evaluate, diagnose and provide genetic counseling and long term management for patients and families with a wide variety of genetic diseases of the nervous system. This clinic is also a clinical training site for medical students, residents, and fellows. The Neurogenetics Clinic is a full day clinic that meets three times each month. Each year the clinic serves over 300 clients who have an array of neurogenetic disorders including Huntington s disease, Charcot Marie Tooth neuropathy, hereditary neuropathy, hereditary ataxias, muscular dystrophies, familial dementia, familial movement disorders, leukodystrophies, Neimann Pick type C, and others. This clinic uses an interdisciplinary team approach that includes a neurologist, a neurogenetic nurse specialist, a genetic counselor and a medical social service worker. The patients receive examination, diagnostic testing, genetic counseling, attention to their social service needs and longitudinal follow up. This represents a unique clinical resource in the state of Washington and includes an outreach clinic on an annual basis in Spokane and Yakima. Phone: 206 598 4030

Performing Direct and/or Demonstration Services

Health-Related Activities

Family Members/Caregivers, Children/Adolescents with Disabilities/SHCN

Specific Groups

State

N/A