ACS RTCCL 2018-2023 Study 1 Characteristics, support needs, outcomes and longitudinal trends of adults with IDD in the NHIS and the NCI Surveys
Project Description:
1. Need - Ongoing data are needed to monitor progress in providing high-quality LTSS to adults with IDD. Updated data are needed about the prevalence of IDD in adults, and about the characteristics and needs of adults with IDD in the general population.
2. Goals
- Conduct studies of factors associated with outcomes as measured in the National Core Indicators
- Improve the technical characteristics of the National Core Indicators Instrument
- Develop an operational definition of IDD for adults in the National Health Interview Survey
- Describe the prevalence, characteristics, and needs of adults with IDD in the noninstitutionalized US population.
3. Features - The NCI is the largest data set in the US providing data on outcomes of Medicaid funded LTSS for adults with IDD. The 2017-2018 NHIS provides a unique opportunity to evaluate the sensitivity and specificity of the 6 American Community Survey Disability Questions for identifying adults with IDD.
4. Benefits - Improved technical characteristics of the NCI, updated prevalence estimates for adults with IDD, recommendations about the appropriate use of the 6 ACS disability questions in research on adults with IDD.
Keyword(s):
Outcomes, Prevalence, Long-term services and supports, IDD, NHIS, NCI
Core Function(s):
Performing Research or Evaluation
Area of Emphasis
Quality Assurance, Health-Related Activities
Target Audience:
Students/Trainees (long or intermediate trainees), Community Trainees / Short term trainees, Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities, Legislators/Policy Makers, General Public
Unserved or Under-served Populations:
None
Primary Target Audience Geographic Descriptor:
National
COVID-19 Related Data:
N/A
