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Project

Supporting Decision Making: Learning from Self-Advocate Experience

Center:

KS-Schiefelbusch Institute for Life Span Studies, UCEDD/LEND

Fiscal Year:

2020

Contact Information:

Evan Dean
[email protected]
913-945-8729

Project Description:

The purpose of this project is to develop and implement a planning process, the Supported Decision-Making Planning Process for Kansans (SDMPPK), that will support people with I/DD and their families to develop SDM plans based on the individual with I/DDs long-term goals. We will accomplish this by partnering with the Self-Advocate Coalition of Kansas (SACK) to combine the lived experience of SDM as currently practiced by self-advocates with the long history of self-determination research at KUCDD. We have three main objectives: 1) Conduct focus groups to understand the SDM arrangements self-advocates have in place. 2) Develop a planning process (the SDMPPK) based on self-advocate experience with SDM and the SDMI. 3) Conduct 2 trainings to educate self-advocates and their family members/caregivers on how to use the SDMPPK to develop SDM plans. 4) Create webpage to serve as a first stop for Kansans interested in SDM.

Keyword(s):

Core Function(s):

Performing Research or Evaluation, Developing & Disseminating Information, Continuing Education/Community Training

Area of Emphasis

Health-Related Activities, Quality of Life

Target Audience:

Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities

Unserved or Under-served Populations:

Geographic Areas, Rural/Remote, Urban

Primary Target Audience Geographic Descriptor:

State

Funding Source: