Promoting Supported Decision Making Planning for Self-Advocates and Families
Project Description:
Years of research on self-determination has demonstrated that when people have increased opportunities to make decisions in their life, they experience better quality of life, employment, independent living outcomes. Adults with I/DD historically have had less opportunity for controlling their life and making decisions for themselves. Supported Decision Making (SDM) provides a way for adults with I/DD to make more decisions for themselves, which can lead to better outcomes. Our goal for this project is to develop a planning process that will support people with I/DD and their families to develop SDM plans based on the individual with I/DDs long-term health goals. We will accomplish this goal partner with Self-Advocate Coalition of Kansas (SACK) to combine the lived experience of SDM as currently practiced by self-advocates with the long history of self-determination research at KUCDD.
The main objectives are:
1) Conduct focus groups to understand the SDM arrangements self-advocates have in place.
2) Develop a planning process based on self-advocate experience with SDM and the SDMI.
3) Conduct 2 trainings to educate self-advocates and their family members on how to use the tool to develop SDM plans.
Core Function(s):
Performing Research or Evaluation, Developing & Disseminating Information, Continuing Education/Community Training
Area of Emphasis
Health-Related Activities, Quality of Life
Target Audience:
Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities
Unserved or Under-served Populations:
Geographic Areas, Rural/Remote, Urban
Primary Target Audience Geographic Descriptor:
State
COVID-19 Related Data:
N/A
