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Project

MI-OCEAN: Michigan Older Caregivers of Emerging Adults with Autism and other Neurodevelopmental Disabilities Family Support Project

Center:

MI-Developmental Disabilities Institute, UCEDD/LEND

Fiscal Year:

2020

Contact Information:

Sharon Milberger
[email protected]
313-577-2654

Project Description:

The MI-OCEAN (pronounced My Ocean) Family Support Project is a statewide initiative focused on improving the health and well-being of aging family caregivers of adults with autism spectrum disorder and other neurodevelopmental disabilities (ASD/NDD). Family Support Navigators (FSN) who are themselves aging caregivers will be recruited and trained to empower their peers to navigate complex systems. MI-OCEAN aligns with existing statewide training programs that build, extend and strengthen the workforce capacity of healthcare professionals. A white paper of system change/sustainability recommendations will be developed by a panel of experts using the Delphi method. Key Issue Area The MI-OCEAN Family Support Project addresses the negative health impacts aging caregivers face when tackling their own age-related issues while supporting their family members with autism and other neurodevelopmental disabilities.

Keyword(s):

aging caregivers; family support

Core Function(s):

Performing Research or Evaluation, Other Direct/Model Services

Area of Emphasis

Quality Assurance, Health-Related Activities, Quality of Life

Target Audience:

Family Members/Caregivers, Adults with Disabilities

Unserved or Under-served Populations:

Geographic Areas, Rural/Remote

Primary Target Audience Geographic Descriptor:

State