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AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

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AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

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AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

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Project

Simons Foundation Powering Autism Research for Knowledge (SPARK)

Center:

NY-Rose F. Kennedy Center, UCEDD/LEND

Fiscal Year:

2019

Contact Information:

Lisa Shulman
[email protected]
718-430-3901

Project Description:

SPARK aims to build a research community of tens of thousands of individuals with autism and their families, who will be asked to share medical and genetic information with scientists and to agree to be contacted about future research studies. The data shared with SPARK researchers will power important new autism research that aims to advance the understanding of autism and provide meaningful information and resources to participants. The RFK UCEDD/LEND under the leadership of Dr. Lisa Shulman, will lead a study that will enroll n=600 persons with autism family members from schools and health organizations in the Bronx and surrounding communities. Participants will complete a series of on-line surveys and contribute samples. Our site is one fo 20 medical centers participating in the study nationwide.

Keyword(s):

autism, genetics, families

Core Function(s):

Performing Research or Evaluation

Area of Emphasis

Health-Related Activities

Target Audience:

Professionals and Para-Professionals

Unserved or Under-served Populations:

Racial or Ethnic Minorities, Disadvantaged Circumstances, Specific Groups

Primary Target Audience Geographic Descriptor:

Mulit-County