2a-3 Family Navigator Project

2019

Family members of people with DD who have become experienced, skillful advocates are an important resource for other people with disabilities and families who are still trying to understand a diagnosis, navigate healthcare service systems, and access needed resources. We are developing a family navigator program, which will be staffed by parents and individuals with disabilities who are experienced advocates themselves, to provide support and advocacy to other families; to participate in training medical students, residents and fellows in providing person- and family-centered care for people with disabilities; and to develop advocacy skills in the individuals and families they support to create systems change. The project will also support the healthcare transition from pediatrics to adult medicine for youth with disabilities and their families. We are currently in the early stages of development, including seeking funding. Expected benefits: Improved quality of life for people with DD and their families. Improvement in the responsiveness of medical service delivery systems.

Continuing Education/Community Training

Health-Related Activities, Quality of Life

Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities, Children/Adolescents with Disabilities/SHCN

Racial or Ethnic Minorities, Disadvantaged Circumstances, Limited English

Mulit-County

N/A