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Project

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Educating Patient Stakeholders for People with Traumatic Spinal Cord Injuries

Center:
IL-Institute on Disability & Human Development, UCEDD/LEND
Fiscal Year:
2018
Contact Information:
Carol Gill
[email protected]
312-355-0550
Project Description:
The aim of this project is to prepare patients with trauma-induced spinal cord injuries (SCI) to play active roles in research to improve their health and quality of life. Under the guidance of an expert panel of researchers, clinicians, caregivers, and advocates, we will develop and implement a curriculum to train a cohort of patients with traumatic SCI to become 'research ready.' We plan to use the lived experience of people with SCI and those who are involved with them (including care givers, treating physicians, community support people, advocacy organizations, and nonprofits) to identify issues that are important to people with SCI and that may be the subject of future research. Finally, it is our intent to create a model that can be replicated by others who want to engage people with SCI in research that affects their health and well-being.
Keyword(s):
Core Function(s):
Continuing Education/Community Training
Area of Emphasis
Health-Related Activities
Target Audience:
Adults with Disabilities
Unserved or Under-served Populations:
Disadvantaged Circumstances
Primary Target Audience Geographic Descriptor:
National
Funding Source:
COVID-19 Related Data:
N/A
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