|

AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

Learn More
|

AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

Learn More
|

AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

Learn More
|

AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

Learn More

Donate

Project

Craniofacial Psychosocial Concerns

Center:

CA-USC, Childrens Hospital, UCEDD/LEND

Fiscal Year:

2018

Contact Information:

Alexis Johns
[email protected]
323-361-7060

Project Description:

Patients born with craniofacial differences have well-established psychosocial concerns which are screened for and addressed as part of the standard of care for Craniofacial Teams outlined by the American Craniofacial-Cleft Palate Association (ACPA). A retrospective chart review of patients in the CHLA Craniofacial Team would significantly contribute to the literature in several aspects. All patients ages birth to age 22 of all diagnoses seen in Craniofacial Team would be included in the review. The analyses would include descriptions of the demographics, medical diagnoses, and the range of identified concerns and related recommendations. Patterns of results based on demographics and/or medical diagnoses would be described as well.

Keyword(s):

Craniofacial Differences, Psychosocial Concerns, Retrospective Chart Review

Core Function(s):

Performing Research or Evaluation

Area of Emphasis

Health-Related Activities

Target Audience:

Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities, Children/Adolescents with Disabilities/SHCN

Unserved or Under-served Populations:

Geographic Areas, Urban

Primary Target Audience Geographic Descriptor:

Not Applicable