|

AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

Learn More
|

AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

Learn More
|

AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

Learn More
|

AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

Learn More

Donate

Project

UA-William Billy Gieszl Pediatric/Congenital Heart Disease Award

Center:

AZ-Institute for Human Development, UCEDD

Fiscal Year:

2018

Contact Information:

Jennifer Andrews
[email protected]
520-626-6816

Project Description:

This project will describe the cognitive and psychosocial profile of adolescents (15 20), early adults (21 25) and older adults (>25) with CHD. Individuals will be selected from UA/BUMG Pediatric and Adult Congenital Cardiology clinics and will be evaluated clinically for executive function performance, DSM V assessments and brain MRI, as well as completion of self-report, caregiver report, and unstructured interviews to collect a complete picture of the deficits, concerns, and outcomes across age groups. The benefits of this project include filling a critical gap in the literature highlighted by two major heart associations and generate the pilot results needed to fund a larger study of national significance.

Keyword(s):

Core Function(s):

Performing Research or Evaluation, Developing & Disseminating Information

Area of Emphasis

Health-Related Activities, Other

Target Audience:

Not Applicable

Unserved or Under-served Populations:

Racial or Ethnic Minorities, Specific Groups

Primary Target Audience Geographic Descriptor:

Not Applicable

Funding Source: