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AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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Project

Prader-Willi Syndrome Project

Center:

TN-Vanderbilt University, UCEDD/LEND

Fiscal Year:

2018

Contact Information:

Elizabeth Roof
[email protected]
615-343-3330

Project Description:

In this project, we are conducting a series of studies on persons with Prader-Willi Syndrome and their families. We aim to understand the whole person with PWS--their strengths as well as problems--and how these features relate to: underlying genetics of PWS, families, neurochemicals that help regulate mood and appetite, aging from childhood through old age, successful life outcomes with food, work, daily living, leisure. By identifying how behavior relates to genetic subtypes, families, neurochemistry, and aging, we can develop more precise behavioral and dietary interventions that lead to positive outcomes for persons with PWS and their families.

Keyword(s):

PWS, research, compulsive behavior

Core Function(s):

Performing Research or Evaluation

Area of Emphasis

Education & Early Intervention, Health-Related Activities, Quality of Life

Target Audience:

Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities, Children/Adolescents with Disabilities/SHCN

Unserved or Under-served Populations:

Specific Groups

Primary Target Audience Geographic Descriptor:

National, International