Supporting Parents with Disabilities-Oklahoma Developmental Disabilities Council (ODDC)

2018

Partner with Oklahoma PwD (parents with disabilities) and other self-advocates to identify obstacles they are facing related to parenting. Based on their responses, partner with the National Center for Parents with Disabilities at Through the Looking Glass (TLG) to plan and provide professional development for health, allied health and human service professionals. Strategies: A) Take part in listening sessions with at least 6 self-advocacy groups to hear their experiences as parents and potential parents and consider what sort of training feel would be helpful to them or the professionals who support them. B) Assist the FAR committee coordinator to identify PwD and other self-advocates to serve on the committee and provide advice and insight on this project. C) Have the training coordinator and another member of the FAR committee attend training on Person Centered Thinking as it is integrating with the Community of practice, facilitated by the UCEDD and ODDC, seeking ways to apply these concepts to PwD and their families. D) Apply to have FAR committee members present at 1-2 statewide conferences on this topic to gauge knowledge and collaboration gaps. E) Work with the FAR committee to explore the capacity of our states Centers for Independent Living (CIL) and the availability of funding at the national level for CIL services dedicated to PwD. F) Work with self-advocates and TLG staff to develop a 2-day training workshop focused on overcoming obstacles for PwD in Oklahoma and purchase supporting materials from TLG. Their resource list can be viewed online at: www.lookingglass.org G) Pilot a lunch & learn screening event of the TLG video, Techniques & Adaptations for Parents with Significant Physical Disabilities with the neonatal staff at OU Childrens Hospital as part of their existing Lunch & Learn series. Provide supporting TLG materials. H) Offer the same screening event as an option for the DHS lunchtime lecture series and provide TLG resource materials. I) Develop a publicity plan utilizing social media, cross agency promotion, personal networking, and website based information/registration to encourage participation in the workshops in both northern and southern Oklahoma by the following groups: a. Parents with disabilities and other self-advocates b. home visitation and parent education staff c. the Department of Human Services staff (multiple sections) d. independent living center staff e. family court and legal service staff f. community resourcing service staff g. Native community members h. healthcare service providers i. mental health services providers j. early childhood service and early intervention service staff k. rehabilitation service staff l. Therapy services (OT, PT, SLP) specifically OTs with an interest in supporting physical disabilities. m. Oklahoma Assistive Technology Center staff J) Provide each Masters level Occupational Therapy program (OUHSC-OKC and OUHSC-Tulsa) and the Oklahoma Assistive Technology Center with TLG adaptive baby care resources. K) Host the 2-day workshops called, SUCCESS strategies: Supporting Parents with Disabilities. Identical workshops will be held in northern and southern Oklahoma (tentative sites: Enid and Shawnee) to allow maximum participation by PwD, self-advocates and professionals from across the state. Based on input from PwD and Self-advocates, potential training topics could include the following areas: a. Utilizing adaptive equipment b. Effective collaboration with parents in early head start c. Legal issues d. Practical strategies for front line professionals e. Child Welfare & Disability f. Mental health services g. Providing healthcare services for PwD and potential PwD h. Advocacy & Legislation: i. Dialog: Inviting native communities to collaborate on this issue j. Dialog: What obstacles exist in data collection around this issue L) Advocate to host a national TASP conference to Oklahoma by 2019.

parents, support, disabilites

Training Trainees, Developing & Disseminating Information, Continuing Education/Community Training

Education & Early Intervention, Other - Assistive Technology

Community Trainees / Short term trainees, Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities, Children/Adolescents with Disabilities/SHCN, General Public

Disadvantaged Circumstances, Geographic Areas, Rural/Remote, Urban, Specific Groups

Mulit-County, State

N/A