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AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

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AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

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AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

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Project

LEND SPARK: Simons Foundation Powering Autism Research for Knowledge

Center:

MN-Institute on Community Integration, UCEDD/LEND

Fiscal Year:

2017

Contact Information:

Amy Esler
[email protected]
612-626-6777

Project Description:

SPARK: Simons Foundation Powering Autism Research for Knowledge, a national cohort of individuals and families affected by Autism Spectrum Disorder: Study with goals to recruit, engage and retain a community of 50,000 individuals with autism spectrum disorder (ASD), along with their family members, in the United States. This will enable researchers to identify the causes of ASD, accelerate clinical research by providing the autism research community with genetic information of consented participants, and establish a research cohort of individuals and families with ASD. The data generated will facilitate identification of additional genes that contribute strongly to ASD and will also help identify additional non-genetic causes of ASD. Both Drs. Amy Esler and Rebekah Hudock, MNLEND faculty are on SPARK.

Keyword(s):

Core Function(s):

Performing Research or Evaluation

Area of Emphasis

Health-Related Activities

Target Audience:

Students/Trainees (long or intermediate trainees), Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities, Children/Adolescents with Disabilities/SHCN, General Public

Unserved or Under-served Populations:

Racial or Ethnic Minorities, Geographic Areas, Rural/Remote, Urban, Specific Groups

Primary Target Audience Geographic Descriptor:

National

Funding Source:

COVID-19 Related Data:

N/A

1100 Wayne Avenue, Suite 1000 Silver Spring, MD 20910

Mailing address:
PO Box 8787
Silver Spring, MD 20907-8787