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AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

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AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

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AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

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Project

UA - Congenital Heart Surveillance To Recognize Outcomes, Needs, and well-beinG

Center:

AZ-Institute for Human Development, UCEDD

Fiscal Year:

2017

Contact Information:

Jennifer Andrews
[email protected]
520-626-6816

Project Description:

The Arizona CHSTRONG project aims to provide a complete understanding of the social and quality of life issues facing adults with CHD, especially in minority and underserved populations. The Arizona population can provide meaningful findings stratified by race as only 56% of our identified CHD population is non-Hispanic white. Population-based surveillance for CHDs across the lifespan is also necessary to determine the type and number of services required to address needs, estimate costs of health services, and assess outcomes that affect the survival of individuals living with CHDs.

Keyword(s):

Core Function(s):

Performing Research or Evaluation

Area of Emphasis

Quality of Life

Target Audience:

Adults with Disabilities

Unserved or Under-served Populations:

Racial or Ethnic Minorities, Disadvantaged Circumstances, Limited English, Geographic Areas, Empowerment Zone, Renewal Community, Reservation, Rural/Remote, Urban

Primary Target Audience Geographic Descriptor:

State

Funding Source:

COVID-19 Related Data:

N/A

1100 Wayne Avenue, Suite 1000 Silver Spring, MD 20910