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Project

Volunteer Advocacy Project

Center:
Fiscal Year:
2017
Contact Information:
Project Description:
Realizing the challenges parents face in advocating for their children with disabilities, The Volunteer Advocacy Project (VAP) trains interested individuals to become special education advocates so they can provide instrumental and affective support to families of children with disabilities. Since its inception in fall of 2008, The VAP has trained over 250 advocates across the state. The VAP is comprised of three parts: (1) a 40-hour training, (2) the shadowing of a special education advocate, and (3) the linkage of the volunteer advocate with four families of children with disabilities. The VAP-T intervention is a part of a larger, 3-year R34 grant to assess the provision of a 12-week workshop to help parents of students with ASD to assess adult services such as SSI, SSDI, housing, employment, medical-health, and post-secondary education. We will give the intervention to 40-50 families in two different VAP-T workshop series to determine whether, as a result of this training, parents can learn about and become more effective advocates for their young adults with ASD, in terms of various types of residential, vocational, health, and other services. In the project's work so far, our research team has developed and revised the workshop curriculum for the 12-week (2-1/2 hours per session) VAP-T sessions; recruited and run the VAP-T sessions this past spring; and is recruiting participating families in the three sites (Nashville, Memphis, Chattanooga), along with working with psychologists to ensure that each of the youth has confirmed ASD diagnoses. Over the coming year we will adapt the revised VAP-T curriculum for publication-dissemination, and the entire research team will begin the more formal implementation, data collection, and preliminary analyses of this "waiting list control" intervention study.
Keyword(s):
parents; youth with ASD; adult services; advocacy
Core Function(s):
Training Trainees, Performing Research or Evaluation, Developing & Disseminating Information, Continuing Education/Community Training, Demonstration Services
Area of Emphasis
Quality Assurance, Education & Early Intervention, Health-Related Activities, Employment-Related Activities, Housing-Related Activities, Quality of Life, Other - Leadership, Other
Target Audience:
Community Trainees / Short term trainees, Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities, Children/Adolescents with Disabilities/SHCN, Legislators/Policy Makers
Unserved or Under-served Populations:
Racial or Ethnic Minorities, Geographic Areas, Urban, Specific Groups
Primary Target Audience Geographic Descriptor:
State
Funding Source:
COVID-19 Related Data:
N/A