LEND: Office of Vice President for Research Infrastructure Award Building an Autism Spectrum Disorders Registry
Project Description:
Building an Autism Spectrum Disorders Registry: A Unique Partnership Opportunity Between the University of Minnesota and the State of Minnesota
Frank Symons, Institute for Community Integration, College of Education and Human Development (CEHD)
Matching funds: CEHD, Department of Pediatrics, Academic Health Center
Autism spectrum disorder (ASD) is a lifelong chronic neurodevelopmental disorder with a profound health and educational burden and associated costs. A public health surveillance system and registry for ASD will allow the U, in partnership with the state of Minnesota, to assess the occurrence of ASD and provide data to inform an evidence-based public health response, with the goal of earlier diagnosis to increase intervention impact, improve outcomes and decrease costs. The surveillance and registry system will also help the U recruit and retain world-class scholarly and clinical talent and increase its national impact in ASD research.
The registry will leverage five domains: estimating prevalence and monitoring trends in ASD; assuring children who have ASD and their families are linked to appropriate health care and related services; informing policy and program decisions; addressing concerns about ASD in communities and educating citizens and professionals about ASD; and supporting health services and etiologic research.
Core Function(s):
Performing Research or Evaluation
Area of Emphasis
Quality Assurance
Target Audience:
Professionals and Para-Professionals, Legislators/Policy Makers
Unserved or Under-served Populations:
Racial or Ethnic Minorities, Disadvantaged Circumstances, Limited English, Geographic Areas
Primary Target Audience Geographic Descriptor:
State
COVID-19 Related Data:
N/A
