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Project

Spina Bifida Registry Project

Center:

OR-Oregon Institute on Development & Disability, UCEDD/LEND

Fiscal Year:

2016

Contact Information:

Kurt Freeman
[email protected]
503-494-0360

Project Description:

The proposed project involves continued involvement in the National Spina Bifida Registry Longitudinal Data Collection Project. As such, we will collect registry information on at least 125 patients with Spina Bifida annually and will share that information with the CDC. Additionally, we will pilot the use of registry data for clinical quality improvement projects, and will develop a guideline manual for this process for potential distribution to other registry sites. Finally, we will continue to implement strategies to integrate documentation of registry data during standard clinical practice, and will evaluate methods of electronic extraction of these data.

Keyword(s):

Core Function(s):

Training Trainees

Area of Emphasis

Health-Related Activities

Target Audience:

Students/Trainees (long or intermediate trainees)

Unserved or Under-served Populations:

None

Primary Target Audience Geographic Descriptor:

State

Funding Source: