National Registry for Leigh Syndrome
Project Description:
This study aims to develop a national registry for patients diagnosed with Leigh syndrome to better understand the natural history of this heterogenous disorder and to provide a resource for clinical studies.
Core Function(s):
Performing Research or Evaluation
Area of Emphasis
Health-Related Activities
Target Audience:
Professionals and Para-Professionals, Family Members/Caregivers
Unserved or Under-served Populations:
None
Primary Target Audience Geographic Descriptor:
Mulit-County
COVID-19 Related Data:
N/A