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Project

Assent for Children and Youth with Spina Bifida Undergoing Surgical Procedures

Center:

CA-USC, Childrens Hospital, UCEDD/LEND

Fiscal Year:

2015

Contact Information:

Cecily Betz
[email protected]
323-361-8524

Project Description:

The purpose of this study is to investigate the assent procedures that are employed for children and youth with spina bifida who undergo surgical procedures. The aim of the study is to understand the processes used by spina bifida centers nationwide to obtain assent from children and youth with spina bifida who have not attained the age of majority for intrusive surgical procedures. All subjects from whom data will be collected are 18 years and older.

Keyword(s):

consent, assent, spina bifida, surgical procedures

Core Function(s):

Performing Research or Evaluation

Area of Emphasis

Health-Related Activities

Target Audience:

Professionals and Para-Professionals, Family Members/Caregivers, Children/Adolescents with Disabilities/SHCN

Unserved or Under-served Populations:

Racial or Ethnic Minorities, Disadvantaged Circumstances, Limited English

Primary Target Audience Geographic Descriptor:

National, International