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AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

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AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

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Project

Spina Bifida Registry Project

Center:

OR-Oregon Institute on Development & Disability, UCEDD/LEND

Fiscal Year:

2014

Contact Information:

Kurt Freeman
[email protected]
503-494-0360

Project Description:

The Spina Bifida National Registry Initiative Research Study at OHSU is currently enrolling and tracking outcomes data on clinic patients with Spina Bifida, a developmental congenital disorder. This study is an excellent opportunity for students interested in research and future graduate study. We are currently looking for student volunteers to assist with data collection, and data entry and tracking of longitudinal outcomes. Students will gain useful research experience and will also gain experience with National registry software programs for data entry and analysis. Duties may include assisting with data collection and data entry and other general office duties in support of the goals of the study.

Keyword(s):

Core Function(s):

Training Trainees, Performing Research or Evaluation, Developing & Disseminating Information, Continuing Education/Community Training

Area of Emphasis

Health-Related Activities

Target Audience:

Students/Trainees (long or intermediate trainees), Professionals and Para-Professionals, Family Members/Caregivers, Children/Adolescents with Disabilities/SHCN

Unserved or Under-served Populations:

Racial or Ethnic Minorities, Disadvantaged Circumstances, Limited English

Primary Target Audience Geographic Descriptor:

State

Funding Source:

Federal

COVID-19 Related Data:

N/A

1100 Wayne Avenue, Suite 1000 Silver Spring, MD 20910

Mailing address:
PO Box 8787
Silver Spring, MD 20907-8787