History, Ethics, and Health Policy: Systems of Care for People with DD
Project Description:
The history of persons with MR/DD continues to influence current policy and ethical decisions. This on-going research and dissemination project explores specific ways in which historical circumstances--documented by professional scholars or emotionally resonant to advocates--affect the lives of persons with MR/DD. Our goals are to (1) inform advocates, policy-makers, and the general public about our shared history; (2) provide critical context to understanding current issues; and (3)improve current policy by learning from past successes and mistakes. We also serve as clinical ethics consultants to Holtz Children's Hospital/Jackson Health Systems, as well as a local consorium of hospitals.
Keyword(s):
History, Policy, Ethics, MR/DD, systems of care
Core Function(s):
Training Trainees, Performing Research or Evaluation, Developing & Disseminating Information
Area of Emphasis
Quality Assurance, Education & Early Intervention, Health-Related Activities, Employment-Related Activities, Housing-Related Activities, Quality of Life, Other - Cultural Diversity, Other
Target Audience:
Students/Trainees (long or intermediate trainees), Community Trainees / Short term trainees, Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities, Children/Adolescents with Disabilities/SHCN, Legislators/Policy Makers, General Public
Unserved or Under-served Populations:
Racial or Ethnic Minorities, Disadvantaged Circumstances, Limited English, Geographic Areas, Urban
Primary Target Audience Geographic Descriptor:
Single-County, Mulit-County, State, National, International
COVID-19 Related Data:
N/A
