Sickle Cell Genetics Project

2012

Establish a follow-up component of Arkansas' sickle cell disease screening program, including community-based hemoglobinopathy counseling, education and support services. Goals and Objectives: The project goal is to improve the lives of children and families affect by sickle cell disorders through newborn screening follow-up and referrals, education, and family support. The objectives are to improve the lives of children with sickle cell and their families by: a) expanding the newborn screening follow-up to include education about sickle cell trait and hemoglobinopathy testing to 500 families of children born with sickle cell trait each year; b) training 70 health care professionals each year; c) providing sickle cell disease education to 500 persons annually; and d) offering family support to 100 families annually

sickle cell, genetics, education, infants, counselors

Performing Technical Assistance and/or Training, Developing & Disseminating Information

Health-Related Activities

Students/Trainees (long or intermediate trainees), Community Trainees / Short term trainees, Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities, Children/Adolescents with Disabilities/SHCN, Legislators/Policy Makers, General Public

Racial or Ethnic Minorities, Disadvantaged Circumstances, Geographic Areas, Rural/Remote, Specific Groups

State

N/A